ADAP Advocacy Association (aaa+)

Conference Agenda | Speaker Biographies | Speaker Presentations

~ Event Speakers ~

William E. Arnold • Ballard EverettEdward HamiltonKathie HiersJoyce Turner Keller • Amy Killelea • Gabriel Seth Koch • Princy Kumar, M.D.
Jeffrey R. LewisElizabeth McLendon • Ariel NovickBritten Pund • Jay ResioAlan RichardsonThe Honorable David Satcher, M.D., Ph.D. 
 Elizabeth M. Shepherd • Deadra Lawson SmithJessica TerlikowskiJoey Terrill • Ben Tesdahl • Joey Wynn

William E. Arnold


William E. Arnold Bill Arnold is a longtime HIV/AIDS activist and consumer organizer and has been active in developing HIV/AIDS Organizations and HIV/AIDS policy at the local, State and national level since the mid 1980's. He is a founding director (1996) of The Title II Community AIDS National Network and is currently its C.E.O. CANN is active nationally and at state and local levels in advocacy and policy issues involving Ryan White Title II (Part B) funding with a particular focus on the crucial role of ADAP programs in the access to HIV care discussions.

Mr. Arnold is also a founder (1995) of The National ADAP Working Group, a Washington, DC based advocacy coalition of HIV/AIDS organizations, medical care providers, pharmaceutical manufacturers, and others. The ADAP Working Group advocates at the federal level for ADAP (AIDS Drug Assistance Program) resources and policies. His involvement with grass roots AIDS work has included roles from Board Chair and Board Member, to "Buddy" to AIDS Educator, Community Outreach Director, & pre & post test HIV Counselor in multiple "Grass Roots" Community Based Organization, and AIDS Service Organization settings.

Mr. Arnold has testified on HIV/AIDS issues before several county legislatures, the New York State Assembly and the United States Congress on numerous occasions. Mr. Arnold has also been active in global AIDS activities and served as Secretary & Treasurer of AIDSETI (AIDS Empowerment and Treatment International) from 2000 to 2006 - an international association of PWA led AIDS service organizations (NGO's) who actively provide HIV/AIDS medical treatment to their members - in 14 countries in Africa and the Caribbean. AIDSETI has main offices in Ouagadougou, Burkina Faso. He currently serves as Co-Chair of the Board of aaa+ (ADAP Advocacy Association) - focused on national and local grass roots advocacy revival efforts as key to the broader access to HIV care and treatment for everyone in the U.S. who needs it - regardless of ability to pay.

Ballard Everett


Ballard Everett Ballard Everett is a public affairs and political consultant based in Raleigh, NC. Since earning his B.A. in Political Science from North Carolina State University in 1969, Ballard has participated in more than 400 political campaigns, worked with numerous trade associations and conducted many public affairs campaigns for corporateand association clients.

Ballard specializes in developing advocacy campaigns and coalition building programs for corporate and association clients. He has worked on issues such as health care, telecommunications, insurance, trade agreements, agriculture, defense and sports at both the state and federal levels. Ballard continues to consult with candidates all across North Carolina ranging from local to statewide candidates. He has served as the lead consultant on the largest and most successful local school bondreferendums in North Carolina.

He was one of the consultants on North Carolina's successful $3.1 billion University and Community College referendum in 2000. In 2006 Ballard served as the lead consultant on the successful $976 million Wake County school bond referendum.

Edward Hamilton


Photo Not AvailableEddie Hamilton has 15 years experience working as an AIDS advocate in various regions of the country. Now living in Columbus, Ohio as of 2005, he is working with Ohio HIV+ individuals at the grassroots level with the ADAP Educational Initiative to gain their advocacy voice. He challenges and encourages them that “complacency is no longer an option.”

For several years, he wore his advocacy hat in Massachusetts as a Consumer Advisory Board (CAB) President at a Cape Cod Service Organization, then he became a board member of the Provincetown AIDS Support Group on Cape Cod assisting that organization with a restructure and merger that had enabled that organization to become the The Aids Support Group of Cape Cod (ASG) The HIV and AIDS organization on Cape Cod and Martha's Vineyard was able to survive the financial climate of 9/11 and beyond.

He was later recognized by both Houses of the Massachusetts Legislature for his efforts. In 2010, he had received his Degree from Columbus State Community College in Legal Studies and will be completing his degree at Ohio University in the Bachelors of Technical and Applied Sciences in the Summer of 2011.

When he isn’t busy “stirring the pot” challenging state agencies and other organizations about wait lists and other cost containment measures (i.e medical criteria) that delay or obstruct access to life saving medications, he spends his spare time saving the neighborhood cats.

Kathie Hiers


Kathie Hires Kathie M. Hiers is the Chief Executive Officer of AIDS Alabama, a nonprofit organization that works statewide to provide housing and supportive services to low-income persons with HIV/AIDS as well as education, outreach, and testing. AIDS Alabama has subcontracts with the other nine AIDS Service Organizations and clinics in the state of Alabama to provide services to all 67 counties. Kathie has been with AIDS Alabama since January 2001. Prior to that, she was the Executive Director of Mobile AIDS Support Services and the founder of the Lee Simmons Fund for People Living with AIDS in Mobile, Alabama.

Kathie is one of 25 people appointed to the Presidential Advisory Council on HIV/AIDS, the body that provides advice and expertise to President Obama and Secretary of Health and Human Services, Kathleen Sebelius. Kathie was recently awarded the University of Alabama's 2010 Outstanding Woman in the Community Award. Kathie has served locally as Co-Chair of the Central Alabama Ryan White Consortium and two-year term as President of the Metropolitan Birmingham Services for the Homeless. Kathie is a member of the Governor of Alabama's HIV Commission for Children, Youth, and Adults and facilitates the Alabama Legislative Workgroup.

Kathie leads the advocacy efforts for the State of Alabama, educating legislators on the state's HIV/AIDS issues and promoting financial support for HIV/AIDS efforts from the Alabama State Legislature. Kathie has been called upon for guidance on the development of state advocacy networks in Florida, Louisiana, Mississippi, North Carolina, South Carolina, and Tennessee. Nationally, Kathie served for four years as Co-Chair of the Southern AIDS Coalition (SAC) and currently heads the Public Policy Committee. Kathie also serves as Vice President of the National AIDS Housing Coalition, as an elected member of the Federal AIDS Policy Partnership Convening Group, and as a board member of the Community Access National Network.

Kathie recently ended a four-year term on the board of the National Association of People with AIDS, where she served as Treasurer. She also represented Alabama's nine Title III clinics in the Communities Advocating for Emergency AIDS Relief (CAEAR) Coalition from 2000 through 2003. Several national magazines, including HIV Plus, Poz, The Washington Blade, The Houston Blade, Positive Populations, Mother Jones, the Progressive, Marie Claire, the Congressional Quarterly, and Southern Voice, have published interviews with Kathie. Her work in Alabama has also been featured in Jacob Levenson's book, The Secret Epidemic: The Story of AIDS and Black America. Kathie co-authored the housing portions of the Southern States Manifesto, as well as major portions of the Southern States Manifesto: Update 2008, released on July 21, 2008. The Manifesto: Update provided the lead story for MSNBC on July 25, 2008, the Kaiser Daily, and periodicals and stations across the country. Kathie is frequently called upon to speak on AIDS housing, advocacy, and service issues. She has been a featured speaker for many press conferences and Congressional Briefings on the Ryan White Act and Housing Opportunities for Persons with AIDS program, as well as for the Southern AIDS Coalition.

Kathie served as Co-Chair of the 2005 National ADAP Conference. In 2006 and 2007, Kathie was featured on a national webcast for the Southern AIDS Coalition, and she conducted workshops for the U.S. Conference on AIDS, the National AIDS Housing Coalition, the National Minority Quality Forum, the National Association of People with AIDS, and the University of Alabama at Birmingham Sparkman Program for visiting physicians from across the globe. Kathie is a graduate of the University of South Alabama with a BA in English.

Joyce Turner Keller


Joyce Turner KellerBishop Joyce Turner Keller has lofted the term “southern hospitality” to an entirely new level. She is not only the founder and CEO of Aspirations, a non-profit faith-based community service organization, but someone who is living with HIV/AIDS herself, and has dedicated herself to educating, supporting and inspiring others living with HIV/AIDS throughout the nation.

In May 2006 she received proclamation from Governor Kathleen Babineaux Blanco of Louisiana for hosting the first Hepatitis Awareness Day, shortly after hosting the first National Women and Girls HIV/AIDS Awareness Day in March of that year. Over the years, Bishop Joyce has incurred an extensive list of certifications, recognitions, and awards for her extensive work in community awareness and development in the HIV/AIDS arena.

She is a certified HIV/AIDS – Hepatitis C Community Educator by the Louisiana State Office of Public Health and the Shreveport Office of Public Health through the Atlanta Center for Disease Control. She has been an ordained minister for thirty five years, is matriculating in the field of Psychology at Southern University Baton Rouge, and is the proud grandmother of thirteen grandchildren!

Amy Killelea


Photo Not AvailableAmy Killelea joined the staff at the Harvard Law School Health Law and Policy Clinic and Treatment Access Expansion Project in July 2010 as a clinical fellow. Her work includes federal health care reform implementation, Medicaid advocacy, as well as work on the Clinic’s State Healthcare Access Research Project (SHARP), which involves state policy analysis and advocacy around access to care for people living with HIV and AIDS.

Prior to joining the Health Law and Policy Clinic, Amy clerked for Justice Denise R. Johnson on the Vermont Supreme Court. During law school, Amy worked at various HIV/AIDS legal services and policy organizations throughout the country and her note, “Collaborative Lawyering Meets Collaborative Doctoring: How a Multidisciplinary Partnership for HIV/AIDS Services Can Improve Outcomes for the Marginalized Sick,” was published in the Georgetown Journal of Poverty Law and Policy.

Before attending law school, Amy worked as a legal assistant for Gay & Lesbian Advocates & Defenders (GLAD) in Boston. Amy received her B.A. from Smith College, magna cum laude, in 2004 and her J.D. from Georgetown University Law Center, magna cum laude, in 2009. She is a licensed member of the state bar of Massachusetts.

Gabriel Seth Koch


Gabriel Seth Koch Gabriel Seth Koch is the Manager of Policy & Federal Affairs at the Community Access National Network. He began his work on HIV/AIDS in 2004 as an intern at CANN during his junior year at George Washington University.

Taking his International Affairs major and combining it with the Congressional experience he gained at CANN, Seth spent his final semester at GW interning for Senator Joe Biden, then Ranking Member, on the Foreign Relations committee.

After graduating in 2006, Seth moved into campaign politics and ran field operations in 6 Washington State counties for Senator Maria Cantwell in the mid-term elections. Shortly thereafter, he moved back into issue advocacy focusing on energy and the environment.

As the Canvass Director for Environment Maryland, his work was crucial in passing the 'Clean Cars Act of 2007' through the state legislature and the 'Clean Energy Act of 2007' through Congress.

Princy Kumar, M.D.


Princy Kumar, M.D.Princy N. Kumar, MD is Professor of Medicine and Microbiology and Senior Associate Dean of Students at Georgetown University School of Medicine, and Chief of Infectious Diseases at Georgetown University Hospital in Washington, DC. She directs the HIV/AIDS Clinic at Georgetown University Hospital.

Dr. Kumar’s areas of research interest focus on infectious diseases, HIV disease and outcomes for both treatment-naïve and treatment-experienced patients. She has a specific interest in the effect of race and gender on the success of antiretroviral regimens. She has participated as Principle or Co-Investigator in a number of studies sponsored by the National Institutes of Health and the National Institute of Allergy and Infectious Diseases. Dr. Kumar has received many teaching awards, including two Sol Katz Society Awards for Persistent Teaching Excellence from Georgetown University Hospital, three Golden Apple Awards for Teaching Excellence from Georgetown University School of Medicine, the Kaiser Permanente Award for Clinical Science for Excellence in Teaching Undergraduate Medical Students, and the Laurence H. Kyle Award for Excellence in House Staff Education. Dr. Kumar was the first woman in Georgetown University School of Medicine history to be inducted into the Golden Orchard for sustained dedication to teaching medical students. She is a Consultant to the Food & Drug Administration for the Antiviral Drugs Committee, is a Consultant to the Peace Corps, and is Medical Director for Gift of Peace, Mother Teresa House for Homeless Patients with AIDS in Washington, DC.

Dr. Kumar’s published works appear in the journals Review of Infectious Disease, Transfusion, Journal of Acquired Immune Deficiency Syndromes, American Journal of Roentgenology, Journal of Clinical Gastroenterology, Clinical Infectious Diseases, The New England Journal of Medicine, and Journal of Clinical Investigation, among others. She has edited two texts, and has contributed a number of abstracts to both national and international scientific meetings and symposia.

Jeffrey R. Lewis


Jeffrey R. Lewis Jeffrey R. Lewis is a recognized leader and philanthropic entrepreneur. An expert in health care, pharmaceuticals and women's pension and retirement issues, he has learned to use the power of the marketplace to create change.

Prior to joining the Heinz Family Office, Mr. Lewis worked in Congress for three Republican Senators and one Democrat. He also worked as an assistant to the last Republican Governor of Oregon.

Mr. Lewis has published extensively and holds three educational degrees: a law degree, a Master's in Gerontology from the University of Southern California, and a bachelor's degree from the University of Michigan.

Elizabeth McLendon


Elizabeth McLendonElizabeth McLendon is the Coordinator for Special Projects and Volunteers at the South Carolina HIV/AIDS Council based in Columbia, South Carolina. Since spring 2010, she has been serving also as the Advocacy Liaison for the statewide South Carolina HIV/AIDS Care Crisis Task Force. Ms. McLendon is the Chair of the HIV/AIDS Ministry of the Episcopal Diocese of Upper South Carolina, a founding member of Women of Faith (interfaith community gatherings), a member of the newly formed Steering Committee of the Interfaith Partners of South Carolina and a former member for nine years of the Board of Directors of the AIDS Benefit Foundation of South Carolina.

Ms. McLendon graduated Magna Cum Laude from the University of South Carolina in 1974. Subsequently living and working for over 20 years in San Francisco -- a city many people consider the original epicenter of the AIDS epidemic -- Ms. McLendon lost countless friends to AIDS. She responded by earning her Master of Arts degree in religious studies at the Institute for Culture and Creation Spirituality in Oakland, California, where she wrote her thesis on using the arts to raise awareness about the HIV epidemic.

In 2004, Ms. McLendon received a certificate in Pastoral Counseling. Combining her two major interests, she helped start the recently launched H.O.P.E. Chaplaincy program to provide free, non-judgmental and interfaith pastoral counseling for people infected with and affected by HIV. In honor of her work with HIV/AIDS throughout South Carolina and her strong belief in promoting partnerships and collaboration, Ms. McLendon was presented with the Outstanding Partner Award at the 2004 South Carolina HIV/STD Conference.    

Ariel Novick


Photo Not AvailableAriel is currently with the Center for Consumer Information and Insurance Oversight at the Centers for Medicare & Medicaid Services (CMS). Ariel was part of the team that set-up the Pre-Existing Condition Insurance Plan (PCIP) program, a program established under the Affordable Care Act to provide coverage for individuals with pre-existing medical conditions.

She currently works on benefit, premium, and payment policy issues affecting the Pre-Existing Condition Insurance Plan. She most recently comes from the CMS Office of Legislation where she was responsible for working with Congress and the Executive branch on legislative issues pertinent to health reform, high risk pools, and federal regulation of private health insurance.

She started with the U.S. Department of Health and Human Services as a Presidential Management Fellow at the Food and Drug Administration’s (FDA) Office of Regulatory Affairs.

Ariel holds a Master’s degree in Public Health from the University of Michigan and Bachelor’s degree from Wellesley College.

Britten Pund


Britten Pund Britten Pund is a Manager with the Health Care Access Program at the National Alliance of State and Territorial AIDS Directors (NASTAD).

Ms. Pund has been with NASTAD since 2006 and is responsible for the research and production of the National ADAP Monitoring Project and ADAP Watch.

Ms. Pund provides support for NASTAD's HRSA Cooperative agreement on the topic of ADAP programmatic management, including formulary and waiting list management, other cost-containment, and cost-effectiveness.

Ms. Pund received her Bachelor's degree from Elon University in North Carolina.

Jay Resio


Jay Resio Jay Resio is the founder and president of MyGov365, a civic engagement platform to connect citizens, elected officials, organizations and government. The company sprang out of simple frustration. Jay woke up one morning to find his front lawn and sidewalk spray painted all different colors.

Looking up and down the street, he noticed the same of his neighbors'. After some investigation, he finally found out what was happening. The spray painting was done by a telecommunications company that had signed a deal with the township to install new communication lines and would be digging up neighborhood lawns.

Jay quickly went from a bewildered and uninformed citizen to a very angry one as he had just paid good money to get his grass reseeded. He knew there had to be a more effective and efficient means to communicate and collaborate for all types of civic information and activities. Thus, MyGov365 was born.

Jay is a graduate of Robert Morris University and was a 2010 finalist for Ernst and Young's Entrepreneur of the Year.

Alan Richardson


Alan Richardson Alan Richardson joined Patient Advocate Foundation in January 2004 as the Vice President of Corporate Development and was promoted to Executive Vice President of Resource Development in December 2004, served as Executive Vice President of Corporate Development Operations and is currently the Chief Development Operations Officer. He is a graduate of Virginia Commonwealth University with a degree in Mass Communications. He has over eighteen years of development experience in the health care field, both in the free clinic and community health center look-alike settings. Alan worked as the Director of Development for the Fan Free Clinic in Richmond, VA. where he was responsible for all grant writing and special event planning and promotion. While there, he obtained funding for a newly created Women and Children’s Health Initiative, a program to provide health care for women and children. He also obtained funding to expand the Food Pantry Project which supplied basic food items for patients living with HIV/AIDS who were clients of the clinics’ AIDS Program, the Richmond AIDS Information Network.

Alan was also the Director of Development for Olde Towne Medical Center located in Williamsburg, VA. Again, he was responsible for all grant writing and special events. Alan was successful in obtaining funding to create the Family Health Care Van project which purchased a 26 foot mobile van that was a “clinic on wheels” that traveled the greater Williamsburg area providing health care. Alan also served as Leader of the agency’s participation in the Bureau of Primary Health Care’s Northeast Redesign Collaborative which redesigned the OTMC patient visit. He also worked as staff support and auction chair for the Autumn Leaf Golf Classic, a golf tournament held at Kingsmill each year. Prior to working in development, Alan was a graphic designer, creating direct mail, advertising materials and campaigns for various companies and clients.

Alan is very involved in his community. He is a past President of the West End Jaycees in Richmond, a past President of the Virginia Jaycees and the Virginia JCI Senate, and is a past National Vice President of the United States Junior Chamber of Commerce. He has served on the Virginia Jaycees Long Term Training Committee, the Corporate Planning Committee and on the Finance Committee. Alan has also trained leaders at the local, state, national and international levels. He has been recognized as a Life Member of the West End and Virginia Jaycees, a US Ambassador (life membership in the US Jaycees) and as a JCI Senator (life membership in the worldwide Jaycees). Alan has also been recognized as an Outstanding Young Man in American four times, Who’s Who in American Advertising, and in 1998 as an Outstanding Young Virginian by the Virginia Jaycees. He was recognized by Patient Advocate Foundation in December 2004 as Advocate of the Year. Alan has served on the Board of Directors of Camp Virginia Jaycee, the American Red Cross-Colonial Virginia Chapter Board, the Williamsburg AIDS Network Board, and The Leadership Historic Triangle Board, a program that he participated in as a class member in 1999.

Alan has been a Trustee on the Virginia Jaycee Foundation since 2002, having served as 2nd Vice President and has served as President since May, 2008. He also is currently serving on the Tidewater AIDS Community Taskforce Board. Alan is a Hampton native and currently resides in Williamsburg.

The Honorable David Satcher, M.D., Ph.D.


The Honorable David Satcher, M.D., Ph.D.Dr. David Satcher served as the 16th Surgeon General of the United States. He was sworn in on February 13, 1998.

Dr. Satcher served simultaneously in the positions of Surgeon General and Assistant Secretary for Health from February 1998 through January 2001. He also held the posts of Director of the Centers for Disease Control and Prevention and Administrator of the Agency for Toxic Substances and Disease Registry from 1993 to 1998.

Before joining the Clinton Administration, he was President of Meharry Medical College in Nashville, Tennessee, from 1982 to 1993.

Dr. Satcher served as professor and chairman of the Department of Community Medicine and Family Practice at Morehouse School of Medicine from 1979 to 1982. He is a former faculty member of the UCLA School of Medicine and Public Health and the Martin Luther King/Drew Medical Center in Los Angeles, where he developed and chaired the King/Drew Department of Family Medicine. From 1977 to 1979, he served as the Interim Dean of the Charles R. Drew Postgraduate Medical School, during which time he negotiated the agreement with the UCLA School of Medicine and the Board of Regents that led to a medical education program at King/Drew. He also directed the King/Drew Sickle Cell Research Center for six years.

Dr. Satcher is a former Robert Wood Johnson Clinical Scholar and Macy Faculty Fellow. He is the recipient of 18 honorary degrees and numerous distinguished honors, including top awards from the American Medical Association, the American College of Physicians, the American Academy of Family Physicians and Ebony magazine. In 1995, he received the Breslow Award in Public Health and in 1997 the New York Academy of Medicine Lifetime Achievement Award. Last year, he received the Bennie Mays Trailblazer Award and the Jimmy and Roslyn Carter Award for Humanitarian Contributions to the Health of Humankind from the National Foundation for Infectious Diseases.

Dr. Satcher graduated from Morehouse College in Atlanta in 1963 and was elected to Phi Beta Kappa. He received his M.D. and Ph.D. from Case Western Reserve University in 1970 with election to Alpha Omega Alpha Honor Society. He did residency/fellowship training at Strong Memorial Hospital, the University of Rochester, UCLA and King/Drew. He is a fellow of the American Academy of Family Physicians, the American College of Preventive Medicine and the American College of Physicians. .Dr. Satcher would most like to be known as the Surgeon General who listens to the American people and who responds with effective programs. His mission is to make public health work for all groups in this nation. He not only is a champion of promoting healthy lifestyles, he is also an avid jogger and enjoys tennis, gardening and reading.

Born in Anniston, Alabama, on March 2, 1941, Dr. Satcher and his wife, Nola, reside in Bethesda, Maryland, and have four grown children.

Elizabeth M. Shepherd


Photo Not Available Elizabeth Shepherd has been an ADAP Advocacy Association Board Member since 2010. Elizabeth is pursing a dual Master Degree in Health Education and Health Care Administration.

She lives in Summerton, SC the central Lake Marion region, where she works as an activity therapist at a residential care facility for people who are chronically ill (HIV/AIDS) and Senior’s involving memory concerns and dementia related health issues.

Elizabeth Shepherd is a founding member of the South Carolina Campaign to End AIDS and has made it her life mission to assist individuals not receiving medications proper resources and state and federal advocacy initiatives. Elizabeth believes that advocacy and self-efficacy to her own building health has enabled her to stream from poverty and hopelessness to self-sufficiency and success.

She continues to grow in her professional educational development and is the passionate and proud South Carolina Representative of the ADAP Advocacy Association.

Deadra Lawson Smith


Deadra Lawson SmithDeadra Lawson Smith is a Community Health Specialist for PROJECT F.A.I.T.H. (Fostering AIDS Initiatives That Heal), a state-wide demonstration project of the South Carolina HIV/AIDS Council, located in Columbia, South Carolina.

Ms. Lawson-Smith serves as Project Coordinator for P.O.S.I.T.I.V.E. Voices, a newly formed advocacy initiative comprised of HIV positive women from around the State of South Carolina. She remains a trainer of Celebrate Recovery, a faith-based centered recovery intervention created through the Saddleback Church founded by Rev. Rick Warren (CA).

Ms. Lawson-Smith is a motivational speaker, workshop facilitator, and local/state/national trainer, who has committed the last 17 years to eliminating HIV/AIDS stigma, educating the community, empowering persons living with HIV/AIDS, and serving as a catalyst for change in the lives of those infected and affected by this epidemic. Deadra Lawson-Smith is also the loving mother of 4 children, Charmaine, Reginald, Sara and Jean-Elizabeth.

Jessica Terlikowski


Jessica TerlikowskiFor the last six years, Jessica Terlikowski has worked to ensure that people living with and at risk of HIV/AIDS have the tools and knowledge necessary to inform and advocate for the policies that impact their lives.

Terlikowski has launched, nurtured, and overseen diverse local and regional coalitions that advocate for harm reduction programs and policies, increased access to existing and emerging HIV prevention tools, wider access to HIV medications, and food security.

Additionally, Terlikowski has enabled greater coordination, communication, and exchanges of successful advocacy strategies and issue expertise among Midwest HIV/AIDS organizations.

Terlikowski has provided support and technical assistance to Midwest and Southern AIDS organizations seeking to develop and implement advocacy strategies to advance sound HIV/AIDS policies in their respective states. She is now laying the groundwork to launch a regional organizing initiative to support and strengthen grassroots HIV/AIDS advocacy efforts.

Joey Terrill


Joey Terrill Joey Terrill has 25 years experience working as an AIDS advocate in California. Based in Los Angeles, this has included 20 years of case management and prevention work with the disabled, including the visually impaired, homeless, and mentally ill populations both able-bodied and those requiring hospice care.

For 8 years he has been an employee of AIDS Healthcare Foundation including 4 years in Public Affairs covering state legislation related to making services for HIV/AIDS more accessible and keeping HIV funding sustainable. With the AHF Public Health Division he has collaborated with other organizations/agencies to increase their capacity for HIV testing in Los Angeles County by providing test kits, counselor/tester training and linkage to care.

Currently the AHF Domestic Advocacy Manager he is working with HIV+ individuals at the grassroots level in states with ADAP wait lists and other cost containment measures that delay or obstruct access to life saving medications. This includes advocacy training and support for enhancing advocacy efforts at both the state and federal levels. As a long term non-progressor, 2011 marks 31 years living as a person with HIV.

Ben Tesdahl


Ben TesdahlBen Tesdahl specializes in the law of tax-exempt organizations. He represents all types of nonprofit entities, including health care providers, charitable and educational organizations, religious organizations, veterans groups, trade and professional associations, and lobbying and political organizations. His practice encompasses the full spectrum of tax, contract law and corporate law issues applicable to exempt organizations.

Mr. Tesdahl has extensive experience reviewing and negotiating hotel, meeting and convention contracts. He also provides consulting and strategic planning assistance to nonprofit organizations, as well as providing advice on governance and bylaws issues. Additionally, he provides advice on relevant collateral areas of law, such as the nonprofit postal regulations, charitable fund-raising statutes, and trademark and copyright law.

Mr. Tesdahl serves as general counsel to some of the country's leading tax-exempt organizations, including: The National Marine Sanctuary Foundation; The National Association of Student Financial Aid Administrators; Association of Public and Land-grant Universities; Officers' Christian Fellowship; Convention Industry Council; Golden Key International Honour Society; and ANCOR and the ANCOR Foundation. He also serves as corporate counsel to St. John's Community Services and its subsidiaries. In addition, Mr. Tesdahl provides tax, corporate and contract law advice to some prominent for-profit entities. Specifically, he serves as general counsel to Trailways Transportation System, Inc. and to Envision EMI, Inc.

Mr. Tesdahl has been an Adjunct Professor of Law at Georgetown University Law Center, where he taught an advanced seminar on tax-exempt organizations as part of the University's graduate tax program. He is co-author of Intermediate Sanctions: Curbing Nonprofit Abuse, published by John Wiley & Sons, New York. For over four years, he also wrote a monthly tax column for the Exempt Organization Tax Review, published by Tax Analysts, and he currently serves on its Editorial Board. He is also the author of The Nonprofit Board's Guide to Bylaws, published by BoardSource, and he serves on its Editorial Board of Advisors.

Mr. Tesdahl is a member of the American Bar Association's Committee on Exempt Organizations, the Exempt Organizations Committee of the District of Columbia Bar, the American Health Lawyers Association, and the Professional Convention Management Association. He was also co-chair of an American Bar Association subcommittee on tax-exempt entities. He is admitted to practice in the District of Columbia, Washington, the Ninth Circuit Court of Appeals, and the United States Supreme Court.

Mr. Tesdahl holds a Bachelor of Science degree from the US Military Academy at West Point and a Master of Science degree in Systems Management from the University of Southern California. He earned his Doctor of Jurisprudence degree from the University of Oregon Law School, where he was selected to the national law school honor society, Order of the Coif. He was also an associate editor of the Oregon Law Review and received both of the review's annual awards for editorial excellence and outstanding achievement. After completing his law degree, Mr. Tesdahl earned a Master of Laws degree in taxation, with distinction, from Georgetown University Law Center.

Joey Wynn


Joey WynnJoey Wynn is a person living with HIV for over 23 years. In 1994, he was involved in the start up of the first Ryan White (Title 1 / Part A) Outpatient HIV Special Immunology Services (SIS) Department at Mercy Hospital in Miami, Florida. In 1996 he joined Florida AIDS Action, a statewide advocacy agency involved throughout Florida to provide medical treatment information & education for both consumers and physicians. Increasing the awareness of State politicians for the need to increase state funding for HIV related services, especially AICP, was another main goal accomplished while at FLAA.

He then served for 5 years as the Ryan White Patient Care Administrator for the Broward County Health Department’s AIDS Program office, overseeing provision of $20 million of HIV services for two clinics four pharmacies and seven subcontractor agencies throughout Broward County. Since then he worked for over 5 years in the Statewide Medicaid HIV Disease management program, Positive Healthcare, as the statewide Community Relations Director. He now works at Broward House, Broward’s Oldest & Largest AIDS Service organization, providing medical care, substance abuse rehabilitation, mental health, and social services for people living with HIV and addressing their long term housing needs.

He is a 14 year member of the Florida AIDS Drug Assistance Program (ADAP) workgroup. He also was a member of the Florida Statewide Medicaid Advisory group and also a past President of the People With AIDS Coalition (PWAC) in Miami Dade County in 1994. He has worked on various Pharmacy formulary panels and workgroups over the past 15 years, and developed a Ryan White funded analysis of Pharmacy efficiency / effectiveness evaluations for the Broward EMA, comparing Florida EMAs cost & utilization models with Florida ADAP.


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