~ Event Panelists ~
William Arnold Leilani Attilio
Keith Blackmon Sherrie Burch
Rob Caldwell Christine
Campbell Lynda Dee
Wayne Greaves Eddie Hamilton
John Hellman Joseph Jefferson
Jason King Brandon Macsata
Joshua Montgomery Glen
Pietrandoni Michael Shankle
Coy Stout Joey Wynn
Bill Arnold is a longtime HIV/AIDS
activist and consumer organizer and has been active in developing HIV/AIDS
Organizations and HIV/AIDS policy at the local, State and national level
since the mid 1980's. He is a founding director (1996) of The Title II Community
AIDS National Network and is currently its C.E.O. CANN is active nationally
and at state and local levels in advocacy and policy issues involving Ryan
White Title II (Part B) funding with a particular focus on the crucial role
of ADAP programs in the access to HIV care discussions.
Mr. Arnold is also a founder (1995) of The National ADAP Working Group, a
Washington, DC based advocacy coalition of HIV/AIDS organizations, medical
care providers, pharmaceutical manufacturers, and others. The ADAP Working
Group advocates at the federal level for ADAP (AIDS Drug Assistance Program)
resources and policies. His involvement with grass roots AIDS work has included
roles from Board Chair and Board Member, to "Buddy" to AIDS Educator, Community
Outreach Director, & pre & post test HIV Counselor in multiple "Grass
Roots" Community Based Organization, and AIDS Service Organization settings.
Mr. Arnold has testified on HIV/AIDS issues before several county legislatures,
the New York State Assembly and the United States Congress on numerous occasions.
Mr. Arnold has also been active in global AIDS activities and served as Secretary
& Treasurer of AIDSETI (AIDS Empowerment and Treatment International)
from 2000 to 2006 - an international association of PWA led AIDS service
organizations (NGO's) who actively provide HIV/AIDS medical treatment to
their members - in 14 countries in Africa and the Caribbean. AIDSETI has
main offices in Ouagadougou, Burkina Faso. He currently serves as Co-Chair
of the Board of aaa+ (ADAP Advocacy Association) - focused on national and
local grass roots advocacy revival efforts as key to the broader access to
HIV care and treatment for everyone in the U.S. who needs it - regardless
of ability to pay.
Leilani Attilio MPH, RN
Leilani Attilio, MPH, RN is
the overdose prevention coordinator for NCHRC.
She served as an Army Nurse Corp Officer for five years and completed two
deployments to Iraq and Afghanistan as a critical care nurse.
She recently completed a Masters of Public Health. with a focus in Hispanic
and border health at the University of Texas at El Paso.
She comes from Philadelphia, PA.
Keith Blackmon is from Bethune,
South Carolina. He has lived with HIV infection since 2004, and HCV since
2006; at that time was terminated from his job, due to illness (HIV). He
moved in 2007 to Bethune SC to take care of an aging grandfather, and get
HIV treatment until 2009.
In 2010, he became a certified beekeeper and opened Jake's Bee Haven, and
in 2011 became a certified journeyman beekeeper and a certified beekeeper
instructor . He has been a client and volunteer at Catawba Care sent 2006,
serving on the client advisers board, a pier consoler, and the advocacy team
among other groups.
He is also a member of the South Carolina HIV /AIDS Care Crisis Task Force.
He has been The Catawba Care Volunteer of The Year.
Sherrie Burch, MS - LCADC (Licensed Clinical Alcohol
and Drug Counselor)
Sherrie Burch, MS LCADC is
the Community Health Assistant/Counselor for Community Counseling Center
of Southern Nevada (CCCSN), a private, non-profit agency that began 23 years
ago to provide Mental Health and Substance Abuse counseling for individuals
infected/affected by HIV.
In 2002, Ms Burch was hired for the position of HIV Counselor after completing
her Masters of Counseling practicum and licensing internship at CCCSN. Ms
Burch had returned to school to change careers after working for a public
entity for 19 years as an auditor during which time she obtained her Certified
Public Accountant license C.P.A. and a Masters in Public Administration.
Ms. Burch does individual and group counseling sessions for clients
infected/affected with HIV and/or HCV.
Ms. Burch coordinates networking and education opportunities for the Las
Vegas HIV/HCV Community.
For five years, Ms. Burch has been a counselor for kids' camps for HIV+ youth
and teens which included teaching the teens about dealing with their diagnosis,
treatment and safer sex.
Dr. Caldwell received his Doctorate in Cellular and
Molecular Pathology from Vanderbilt University, where he specialized in HIV
disease pathogenesis and its effects in the pulmonary system. He completed
his post-doctoral fellowship at Vanderbilt University School of Medicine
where he utilized emerging technologies to identify molecular signatures
that rapidly diagnose and prognosticate several relevant human diseases,
including breast and bone cancer, osteoporosis, and infectious diseases.
Upon completion of his fellowship, Dr. Caldwell was promoted to Assistant
Professor of Medicine and Clinical Pharmacology at Vanderbilt University
School of Medicine, where he led clinical and basic research focusing on
bone diseases and cancer. He has authored over 20 publications in peer-reviewed
journals and two book chapters, procured competitive grant funding from
government and private entities, and has delivered over a dozen invited platform
After his tenure at Vanderbilt, Dr. Caldwell was recruited to the National
Capital Region to support the Department of Homeland Security (DHS) is its
anti-terrorism biosurveillance efforts. This included technical analysis,
procurement and acquisition of cutting-edge biodetection modalities and forming
cross-functional teams spanning major cities to determine operational testing
and evaluation of a billion-dollar biodetection technology program.
In the private and non-for-profit sectors, Dr. Caldwell provides subject
matter expertise to the business and broader biomedical and healthcare
communities of practice that would inform research, policy decisions and
business operations. Examples include informing and supporting lobbying groups
for policy positions and initiatives, as well as to caregivers and consumers
to elucidate emerging diagnostic technologies, mechanisms of drug action/s,
and disease pathogenesis. This is supported by over a decade of experience
in communicating, informing and supporting key decision makers from various
educational backgrounds concerning high-level medical and scientific concepts.
Christine Campbell, Vice
President of National Advocacy and Organizing oversees Housing Works' national
and global policy, advocacy and organizing activities including Housing Works'
support of the Campaign to End AIDS (C2EA), managing the DC and Mississippi
offices and advocacy participation in the International AIDS Housing Roundtable
and International AIDS Conferences.
Ms. Campbell has her Masters of Science in Organizational Development from
American University and has spent over 21 years operating housing programs,
training HIV/AIDS housing providers and advocating for people with special
Ms. Campbell serves as a board member of the National AIDS Housing Coalition
that works to insure that indigent persons living with HIV/AIDS have access
to stable housing and services and served as an adjunct professor New York
University's Wagner School of Public Administration.
Lynda Dee is an HIV/AIDS treatment activist and was
a co-founder of AIDS Action Baltimore in 1987. Ms. Dee has also worked as
a cancer and HCV activist. She works with academia, industry and government
to expedite ethical drug development to provide access to life-saving medications
before approval and to ensure reasonably drug prices and increases.
Ms. Dee has served on national and local boards and made local and national
presentations on HIV and HCV. She has been a member of various FDA Antiviral
Drugs Advisory approval panels, including both the first HIV and HCV Protease
Inhibitor Hearings and has been a member of many NIH Advisory Boards, including,
NCI, the Office of AIDS Research, NIMH, NIDS, NIDA and NIAID, serving on
the ACTG Executive Committee and their Community Constituency Group.
She has also served on various industry HIV and HCV community advisory boards
and national and international community research advisory boards, including
the AIDS Treatment Activist Coalition and the Hepatitis Community Advisory
Board. Ms. Dee also serves as the Point Person for the HIV and HCV Fair Pricing
Coalition and has been a member of the Executive Committee and presenter
for the Forum for Collaborative HIV Research.
Dr. Greaves received his
M.D. degree from McGill University in Montreal Canada. After training in
Internal Medicine and Clinical Pharmacology he moved to Vanderbilt University
to pursue training in Infectious Diseases. Subsequently, he served as a Visiting
Scientist at the Centers for Disease Control in Atlanta, Georgia, before
moving to Howard University in Washington, D.C., where he was Director of
the HIV/AIDS Clinical Trials Unit, and Chief of the Infectious Diseases Division.
He is a past board member of the National Minority AIDS Council, and the
FDA Antiviral Advisory committee. For the past 15 years, he has been involved
in drug development at Schering Plough Research Institute and subsequently
at Merck Research Laboratories, in Kenilworth, NJ, where he currently works.
He is a Senior Director in the Infectious Diseases Section involved in the
development of new drugs for Hepatitis.
Photo and biography coming soon! Please check back!
John Hellman is the Director of Advocacy for the
Latino Commission on AIDS, joining in November of 2010. In this capacity,
he does local, state, and federal work on a broad range of issues that impact
Latinos affected by HIV, AIDS, HCV, and other health challenges.
He has successfully lead efforts to restore HIV prevention funding cuts in
NYC, ensure vital patient protection to NYS Medicaid patients, and the
development of a bilingual video series that promote strategies Latinos/Hispanics
living with HIV and HIV service providers can use to help identify and overcome
barriers to effective HIV care.
He earned his Master's degree in Humanities and Social Thought from New York
University and currently resides in New York, NY.
Joseph Jefferson brings to
his role as HealthHIV's Director of Advocacy and Alliance nearly 20 years
of experience in health-related resource development, organizational development,
coalition building, and LGBT health advocacy. Before joining HealthHIV, Jefferson
was the Senior Policy Associate at the National Coalition for LGBT Health.
Previously, Jefferson held senior leadership positions with the New York
LGBT Community Center; Our House of Portland - an HIV/AIDS service provider
in Oregon; and The Collins Group - a Pacific Northwest-based capital campaign
consulting firm. Jefferson earned his MPH at the Columbia University Mailman
School of Public Health, producing a seminal report on HIV & Aging for
the AIDS Community Research Initiative of America in New York.
Jefferson leads HealthHIVs expanding advocacy platform across multiple
initiatives that include integrated HIV primary care and service delivery
models, workforce capacity building and training, leading edge prevention
and treatment, health equity, LGBT health, and Affordable Care Act
Jason King, a transplant from Los Angeles, California,
now enjoys living in Fort Lauderdale, Florida. He started working for AIDS
Healthcare Foundation (AHF) in 2010 in the organization's pharmacydivision
where he discovered his passion for patient advocacy.
During the years 2010 and 2011, the country experienced an ADAP crisis that
threatened thousands of patients and their ability to access treatment. In
his role as a patient advocate, King successfully helped lead a statewide
movement in Florida to prevent the reduction in income eligibility guidelines
that would have ejected hundreds, if not thousands, from the program. During
this time, King also actively participated in lobbying for greater funding
to ADAP. There is now no wait list in Florida.
King now serves as Advocacy and Legislative Affairs Manager in AHF's Southern
Bureau, where he leads local, state-level and nationwide advocacy efforts
and maintains relations with state and federal officials. King continues
to lead other state and national efforts that concern access to treatment
and HIV drug pricing.
King has been HIV positive for nearly 7 years and aims to have an active
role in reducing stigma that revolves around HIV/AIDS especially in the gay
community. As a former beneficiary of the AIDS Drug Assistance Program, King
seeks to preserve the program as he joins others in protecting and expanding
its capacity to provide lifesaving therapy to those in need. In his free
time, King is a runner, a foodie, and a classical pianist.
Brandon Macsata serves as Managing
Partner of The Macsata-Kornegay Group, Inc. a national political and
fundraising consulting firm specializing in grassroots campaigns, media messaging
and political fundraising. He is widely recognized for his ability to connect
national, state and local stakeholders interested in influencing public policy.
Macsata has extensive experience working with political candidates, national
and statewide trade associations, and other corporate entities. In November
2009, Macsata was acknowledged by HIV-Plus Magazine to be amongst the Top
25 LGBT Leaders Fighting HIV/AIDS.
First diagnosed as HIV-positive in March 2002, Macsata has dedicated much
of his professional and personal life advocating for persons living with
HIV/AIDS. He currently serves as CEO of the ADAP Advocacy Association (aaa+),
a national non-profit organization working to improve the AIDS Drug Assistance
Program (ADAP). In his capacity as CEO, he has successfully assembled a wide
spectrum of ADAP stakeholders to re-energize patient advocacy around the
AIDS Drug Assistance Program at the national level. From November 2003 to
March 2006, he authored a weekly news column on national HIV-related stories
for The Weekly News in Miami, Florida.
He is also a former ADAP recipient. At the age of 27, Macsata was the youngest
Executive Director of a national trade association; he managed the American
Congress of Community Support & Employment Services (ACCSES) from 2000-2003,
a national trade association representing the interests of community, non-profit
agencies providing supports and services to persons with disabilities. Prior
to moving to Washington, DC in 2000, he opened a 100-bed assisted living
care facility in Wilmington, North Carolina. Serving as the facilitys
assistant administrator, Macsata worked closely with community leaders and
state agencies to advocate for seniors.
Macsata has advised candidates for political office, and has also run for
office himself at the local and national levels. In 1995, he was just 79
votes short of beating a 22-year incumbent and becoming the youngest person
ever elected in the State of North Carolina. In 2000, he formed an exploratory
committee to run for the U.S. House of Representatives before ultimately
deciding against running for that office. He is a graduate of the University
of North Carolina at Wilmington, where he graduated Cum Laude with a Bachelor
of Arts in political science. In April 2009, UNCW awarded Macsata
and his business partner the Political Science Departments
Outstanding Political Science Graduate award in recognition for
Joshua Montgomery, HIV PREVENTION DIRECTOR / VEGAS
Joshua Montgomery is a native
San Diegan. Joshua has been clean and sober ever since July 14, 1997 when
he found out he was HIV+. Joshua has been active in various recovery programs
and service work to help those who struggle with addiction. He began his
academic studies in 1998 at San Diego Community College with his focus on
becoming a counselor.
Joshua moved to Las Vegas in June 2003 and a couple of months later he began
working for The Gay and Lesbian Community Center of Southern Nevada. Joshua
ran the youth group, coordinated the Vegas Mpowerment Project and counseled
those who needed support during the day. He continued his education attending
various conferences around the country dealing with HIV/AIDS. Joshua left
the Center in 2007 and continued his education at UNLV working on his degree
in Social Work.
Joshua returned to The Center December 1, 2009 as the HIV Prevention Coordinator
and was promoted to HIV Prevention Director in 2012. Joshua continues his
social work course studies (part-time) at UNLV.
Glen Pietrandoni, RPh
Glen Pietrandoni, RPh, AAHIVE
is a 1979 graduate of the St. Louis College of Pharmacy began his pharmacy
career as the owner of multiple independent pharmacies in Chicago and its
suburbs for 10 years. His pharmacies were purchased by Walgreens in 1990,
around the time of the approval of the first HIV/AIDS drugs. At that time,
he began working with this community, dispensing much-needed emotional support
as well as medication during a time when people did not survive as long with
HIV/AIDS as they do today.
From 1996 to 2003, he managed the Walgreens pharmacy at the Howard Brown
Health Center which specializes in HIV/AIDS-the first Walgreens pharmacy
of its kind, located in an LGBT community center. Today, Walgreens serves
people living with HIV/AIDS in all communities across the country, including
more than 120 locations within health centers focused on HIV/AIDS. Now a
24-year veteran with Walgreens, Glen is responsible for pharmacy services
for people living with HIV/AIDS and Hepatitis across the country. Some of
his key accomplishments include implementing patient support programs across
multiple channels and providing pharmacist HIV and Hepatitis education.
As part of his ongoing commitment to supporting patients with HIV/AIDS, Glen
earned his American Academy of HIV Medicine Expert designation in 2008. At
the national level, Glen is a member of the Boards of Directors of ADAP Advocacy
Association and AIDS United. He also plays an active role in community
initiatives, co-chairing gala committees for HBHC and the AIDS Foundation
of Chicago. Glen is also a member of WPRIDE, the Walgreens LGBT affinity
group. He is the recipient of the following awards: 2002 Volunteer of the
Year, Test Positive Aware Network, 1999 Drug Topics Magazine Pharmacist of
the Year-Overall Performance and 1998 Drug Topics Magazine Pharmacist of
the Year-Community Service.
Michael D. Shankle, MPH
Michael D. Shankle,
MPH, is the Director of Prevention and Policy As HealthHIV's Director Prevention
Michael is responsible for leading the organization's day-to-day prevention
and policy efforts. Prior to joining HealthHIV, Michael began his career
as a research specialist with the University of Pittsburgh's Graduate School
of Public Health in the Department of Infectious Diseases and Microbiology,
where he combined his experience of behavioral health sciences, health research,
and technology, to develop online HIV/STI interventions.
While there, he implemented programming that facilitated parity, inclusion,
and representation of high-risk, sexually active young adults in HIV community
planning processes. In 2006, Michael joined the AIDS Action Committee of
Massachusetts, first as Director of The MALE Center (Boston's gay and bisexual
men's community health and wellness center), and then as Director of Gay,
Lesbian, Bisexual and Transgender health.
Michael has a BS in Biology from the University of Pittsburgh at Johnstown,
PA, and a MPH from the University of Pittsburgh's Graduate School of Public
Coy Stout joined Gilead Sciences in 2004. As Vice
President of U.S. Managed Markets, he leads the National Accounts, Market
Access, and Business Operations and Contracts departments for the U.S. commercial
organization. Areas of responsibility include public and private payer coverage,
patient access programs, product distribution, and government pricing programs
for Gilead's products marketed in the U.S. for HIV/AIDS, Hepatitis B, Cystic
Fibrosis, Pulmonary Arterial Hypertension, and Ischemic Heart Disease.
Since 2008, he has served on the Board of Directors of the Gilead Foundation,
a non-profit organization that seeks to improve the health and well-being
of underserved communities around the world. Coy has worked in the field
of HIV/AIDS since the early 1990's in various roles as a clinical social
worker at the Whitman-Walker Clinic in Washington, DC and as the director
of the Maryland AIDS Drug Assistance Program.
Prior to joining Gilead, he was Associate Director of Healthcare Policy and
Reimbursement at PAREXEL International Corporation. Coy earned his Bachelor
of Science and Master of Social Work at the University of Alabama.
Joey Wynn, Director of Public Policy, Minority Development
& Empowerment, MDE
Joey Wynn has made a career in HIV advocacy, public
policy and working in a variety of public health settings over the course
of his 22 years in the state of Florida. In 1994, he was involved in the
start up of the first Ryan White Outpatient HIV Program (SIS) Dept. at Mercy
Hospital in Miami, FL.
In 1996 he joined Florida AIDS Action (FLAAC), based in North Miami, it was
a statewide advocacy agency providing medical treatment information &
education for patients and physicians; with a focus on increasing awareness
for funding from the State Legislature for HIV related services, especially
the AIDS Insurance Continuation Program by bringing in a multi-bus tour with
patients from around the state to the Capitol, resulting in the first million
dollars of state funding earmarked for the AICP program as well as additional
funding for other HIV projects.
Then he served for 5 years as the Ryan White Patient Care Administrator for
the Broward County Health Department's AIDS Program office, overseeing provision
of $20 million of HIV services for two clinics, four pharmacies, and seven
subcontractor agencies throughout Broward County.
His next step was a five year role in the Statewide Medicaid HIV Disease
Management program, Positive Healthcare, as the statewide Community Relations
Director. Acting as a liaison with the six HIV Ryan White "Part A" planning
bodies across six cities, he worked directly with various HIV service delivery
systems of care throughout Florida. Joey then worked for Broward House for
5 years as the Director of Public Policy. BH is an AIDS Service organization
providing the entire spectrum of services for clients: Housing, primary medical
care, substance abuse rehabilitation, mental health, and social services
for people living with HIV.
He currently is involved at Minority Development & Empowerment as the
Public Policy & Community Affairs Consultant, involved in the creation
of the first South Florida Hepatitis Network, coordinating grants, and
recruitment of providers for a comprehensive indigent care testing linkage
and care program for Hep C patients.
He served 14 years on the Florida AIDS Drug Assistance Program (ADAP) workgroup,
and served for the past 4 years on the Board of Directors for the National
ADAP Advocacy Association (aaa+) in Washington D.C.
He is currently the Chair of the Area 10 Consortia, South Florida AIDS Network
(SFAN), serving over 8 years. He also served four years as a member of the
Florida Statewide Medicaid Advisory group. He has worked on various local,
State, and Federal Pharmacy formulary panels and workgroups over the past
17 years, and developed a Ryan White Part A funded analysis of Pharmacy
efficiency / effectiveness in an evaluation report for the Broward County
EMA, comparing Florida EMAs for cost & utilization with the Florida ADAP