ADAP Advocacy Association (aaa+)

Conference Agenda   |    Panelists Biographies   |   Panelists Presentations

~ Event Panelists ~

William ArnoldLeilani AttilioKeith BlackmonSherrie BurchRob CaldwellChristine Campbell • Lynda Dee • Wayne GreavesEddie Hamilton
John HellmanJoseph JeffersonJason KingBrandon MacsataJoshua MontgomeryGlen PietrandoniMichael Shankle • Coy Stout • Joey Wynn

William Arnold

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William ArnoldBill Arnold is a longtime HIV/AIDS activist and consumer organizer and has been active in developing HIV/AIDS Organizations and HIV/AIDS policy at the local, State and national level since the mid 1980's. He is a founding director (1996) of The Title II Community AIDS National Network and is currently its C.E.O. CANN is active nationally and at state and local levels in advocacy and policy issues involving Ryan White Title II (Part B) funding with a particular focus on the crucial role of ADAP programs in the access to HIV care discussions.

Mr. Arnold is also a founder (1995) of The National ADAP Working Group, a Washington, DC based advocacy coalition of HIV/AIDS organizations, medical care providers, pharmaceutical manufacturers, and others. The ADAP Working Group advocates at the federal level for ADAP (AIDS Drug Assistance Program) resources and policies. His involvement with grass roots AIDS work has included roles from Board Chair and Board Member, to "Buddy" to AIDS Educator, Community Outreach Director, & pre & post test HIV Counselor in multiple "Grass Roots" Community Based Organization, and AIDS Service Organization settings.

Mr. Arnold has testified on HIV/AIDS issues before several county legislatures, the New York State Assembly and the United States Congress on numerous occasions. Mr. Arnold has also been active in global AIDS activities and served as Secretary & Treasurer of AIDSETI (AIDS Empowerment and Treatment International) from 2000 to 2006 - an international association of PWA led AIDS service organizations (NGO's) who actively provide HIV/AIDS medical treatment to their members - in 14 countries in Africa and the Caribbean. AIDSETI has main offices in Ouagadougou, Burkina Faso. He currently serves as Co-Chair of the Board of aaa+ (ADAP Advocacy Association) - focused on national and local grass roots advocacy revival efforts as key to the broader access to HIV care and treatment for everyone in the U.S. who needs it - regardless of ability to pay.

Leilani Attilio MPH, RN

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Leilani AttilioLeilani Attilio, MPH, RN is the overdose prevention coordinator for NCHRC.

She served as an Army Nurse Corp Officer for five years and completed two deployments to Iraq and Afghanistan as a critical care nurse.

She recently completed a Masters of Public Health. with a focus in Hispanic and border health at the University of Texas at El Paso.

She comes from Philadelphia, PA.

 

Keith Blackmon

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Keith BlackmanKeith Blackmon is from Bethune, South Carolina. He has lived with HIV infection since 2004, and HCV since 2006; at that time was terminated from his job, due to illness (HIV). He moved in 2007 to Bethune SC to take care of an aging grandfather, and get HIV treatment until 2009.

In 2010, he became a certified beekeeper and opened Jake's Bee Haven, and in 2011 became a certified journeyman beekeeper and a certified beekeeper instructor . He has been a client and volunteer at Catawba Care sent 2006, serving on the client advisers board, a pier consoler, and the advocacy team among other groups.

He is also a member of the South Carolina HIV /AIDS Care Crisis Task Force. He has been The Catawba Care Volunteer of The Year.

Sherrie Burch, MS - LCADC (Licensed Clinical Alcohol and Drug Counselor)

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Sherrie Burch, MSSherrie Burch, MS LCADC is the Community Health Assistant/Counselor for Community Counseling Center of Southern Nevada (CCCSN), a private, non-profit agency that began 23 years ago to provide Mental Health and Substance Abuse counseling for individuals infected/affected by HIV.

In 2002, Ms Burch was hired for the position of HIV Counselor after completing her Masters of Counseling practicum and licensing internship at CCCSN. Ms Burch had returned to school to change careers after working for a public entity for 19 years as an auditor during which time she obtained her Certified Public Accountant license C.P.A. and a Masters in Public Administration.

Ms. Burch does individual and group counseling sessions for clients infected/affected with HIV and/or HCV.

Ms. Burch coordinates networking and education opportunities for the Las Vegas HIV/HCV Community.

For five years, Ms. Burch has been a counselor for kids' camps for HIV+ youth and teens which included teaching the teens about dealing with their diagnosis, treatment and safer sex.

Dr. Rob Caldwell

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Dr. Rob CaldwellDr. Caldwell received his Doctorate in Cellular and Molecular Pathology from Vanderbilt University, where he specialized in HIV disease pathogenesis and its effects in the pulmonary system. He completed his post-doctoral fellowship at Vanderbilt University School of Medicine where he utilized emerging technologies to identify molecular signatures that rapidly diagnose and prognosticate several relevant human diseases, including breast and bone cancer, osteoporosis, and infectious diseases.

Upon completion of his fellowship, Dr. Caldwell was promoted to Assistant Professor of Medicine and Clinical Pharmacology at Vanderbilt University School of Medicine, where he led clinical and basic research focusing on bone diseases and cancer. He has authored over 20 publications in peer-reviewed journals and two book chapters, procured competitive grant funding from government and private entities, and has delivered over a dozen invited platform presentations, nationwide.

After his tenure at Vanderbilt, Dr. Caldwell was recruited to the National Capital Region to support the Department of Homeland Security (DHS) is its anti-terrorism biosurveillance efforts. This included technical analysis, procurement and acquisition of cutting-edge biodetection modalities and forming cross-functional teams spanning major cities to determine operational testing and evaluation of a billion-dollar biodetection technology program.

In the private and non-for-profit sectors, Dr. Caldwell provides subject matter expertise to the business and broader biomedical and healthcare communities of practice that would inform research, policy decisions and business operations. Examples include informing and supporting lobbying groups for policy positions and initiatives, as well as to caregivers and consumers to elucidate emerging diagnostic technologies, mechanisms of drug action/s, and disease pathogenesis. This is supported by over a decade of experience in communicating, informing and supporting key decision makers from various educational backgrounds concerning high-level medical and scientific concepts.

Christine Campbell

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Christine CampbellChristine Campbell, Vice President of National Advocacy and Organizing oversees Housing Works' national and global policy, advocacy and organizing activities including Housing Works' support of the Campaign to End AIDS (C2EA), managing the DC and Mississippi offices and advocacy participation in the International AIDS Housing Roundtable and International AIDS Conferences.

Ms. Campbell has her Masters of Science in Organizational Development from American University and has spent over 21 years operating housing programs, training HIV/AIDS housing providers and advocating for people with special needs.

Ms. Campbell serves as a board member of the National AIDS Housing Coalition that works to insure that indigent persons living with HIV/AIDS have access to stable housing and services and served as an adjunct professor New York University's Wagner School of Public Administration.

Lynda Dee

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Lynda DeeLynda Dee is an HIV/AIDS treatment activist and was a co-founder of AIDS Action Baltimore in 1987. Ms. Dee has also worked as a cancer and HCV activist. She works with academia, industry and government to expedite ethical drug development to provide access to life-saving medications before approval and to ensure reasonably drug prices and increases.

Ms. Dee has served on national and local boards and made local and national presentations on HIV and HCV. She has been a member of various FDA Antiviral Drugs Advisory approval panels, including both the first HIV and HCV Protease Inhibitor Hearings and has been a member of many NIH Advisory Boards, including, NCI, the Office of AIDS Research, NIMH, NIDS, NIDA and NIAID, serving on the ACTG Executive Committee and their Community Constituency Group.

She has also served on various industry HIV and HCV community advisory boards and national and international community research advisory boards, including the AIDS Treatment Activist Coalition and the Hepatitis Community Advisory Board. Ms. Dee also serves as the Point Person for the HIV and HCV Fair Pricing Coalition and has been a member of the Executive Committee and presenter for the Forum for Collaborative HIV Research.

Wayne Greaves, MD

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Wayne Greaves, MDDr. Greaves received his M.D. degree from McGill University in Montreal Canada. After training in Internal Medicine and Clinical Pharmacology he moved to Vanderbilt University to pursue training in Infectious Diseases. Subsequently, he served as a Visiting Scientist at the Centers for Disease Control in Atlanta, Georgia, before moving to Howard University in Washington, D.C., where he was Director of the HIV/AIDS Clinical Trials Unit, and Chief of the Infectious Diseases Division.

He is a past board member of the National Minority AIDS Council, and the FDA Antiviral Advisory committee. For the past 15 years, he has been involved in drug development at Schering Plough Research Institute and subsequently at Merck Research Laboratories, in Kenilworth, NJ, where he currently works.

He is a Senior Director in the Infectious Diseases Section involved in the development of new drugs for Hepatitis.

Eddie Hamilton

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Photo and biography coming soon! Please check back!

John Hellman

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John HellmanJohn Hellman is the Director of Advocacy for the Latino Commission on AIDS, joining in November of 2010. In this capacity, he does local, state, and federal work on a broad range of issues that impact Latinos affected by HIV, AIDS, HCV, and other health challenges.

He has successfully lead efforts to restore HIV prevention funding cuts in NYC, ensure vital patient protection to NYS Medicaid patients, and the development of a bilingual video series that promote strategies Latinos/Hispanics living with HIV and HIV service providers can use to help identify and overcome barriers to effective HIV care.

He earned his Master's degree in Humanities and Social Thought from New York University and currently resides in New York, NY.

Joseph Jefferson

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Joseph JeffersonJoseph Jefferson brings to his role as HealthHIV's Director of Advocacy and Alliance nearly 20 years of experience in health-related resource development, organizational development, coalition building, and LGBT health advocacy. Before joining HealthHIV, Jefferson was the Senior Policy Associate at the National Coalition for LGBT Health.

Previously, Jefferson held senior leadership positions with the New York LGBT Community Center; Our House of Portland - an HIV/AIDS service provider in Oregon; and The Collins Group - a Pacific Northwest-based capital campaign consulting firm. Jefferson earned his MPH at the Columbia University Mailman School of Public Health, producing a seminal report on HIV & Aging for the AIDS Community Research Initiative of America in New York.

Jefferson leads HealthHIV’s expanding advocacy platform across multiple initiatives that include integrated HIV primary care and service delivery models, workforce capacity building and training, leading edge prevention and treatment, health equity, LGBT health, and Affordable Care Act implementation.

Jason King

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Jason KingJason King, a transplant from Los Angeles, California, now enjoys living in Fort Lauderdale, Florida. He started working for AIDS Healthcare Foundation (AHF) in 2010 in the organization's pharmacydivision where he discovered his passion for patient advocacy.

During the years 2010 and 2011, the country experienced an ADAP crisis that threatened thousands of patients and their ability to access treatment. In his role as a patient advocate, King successfully helped lead a statewide movement in Florida to prevent the reduction in income eligibility guidelines that would have ejected hundreds, if not thousands, from the program. During this time, King also actively participated in lobbying for greater funding to ADAP. There is now no wait list in Florida.

King now serves as Advocacy and Legislative Affairs Manager in AHF's Southern Bureau, where he leads local, state-level and nationwide advocacy efforts and maintains relations with state and federal officials. King continues to lead other state and national efforts that concern access to treatment and HIV drug pricing.

King has been HIV positive for nearly 7 years and aims to have an active role in reducing stigma that revolves around HIV/AIDS especially in the gay community. As a former beneficiary of the AIDS Drug Assistance Program, King seeks to preserve the program as he joins others in protecting and expanding its capacity to provide lifesaving therapy to those in need. In his free time, King is a runner, a foodie, and a classical pianist.

Brandon Macsata

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Brandon MacsataBrandon Macsata serves as Managing Partner of The Macsata-Kornegay Group, Inc. – a national political and fundraising consulting firm specializing in grassroots campaigns, media messaging and political fundraising. He is widely recognized for his ability to connect national, state and local stakeholders interested in influencing public policy. Macsata has extensive experience working with political candidates, national and statewide trade associations, and other corporate entities. In November 2009, Macsata was acknowledged by HIV-Plus Magazine to be amongst the “Top 25 LGBT Leaders Fighting HIV/AIDS”.

First diagnosed as HIV-positive in March 2002, Macsata has dedicated much of his professional and personal life advocating for persons living with HIV/AIDS. He currently serves as CEO of the ADAP Advocacy Association (aaa+), a national non-profit organization working to improve the AIDS Drug Assistance Program (ADAP). In his capacity as CEO, he has successfully assembled a wide spectrum of ADAP stakeholders to re-energize patient advocacy around the AIDS Drug Assistance Program at the national level. From November 2003 to March 2006, he authored a weekly news column on national HIV-related stories for The Weekly News in Miami, Florida.

He is also a former ADAP recipient. At the age of 27, Macsata was the youngest Executive Director of a national trade association; he managed the American Congress of Community Support & Employment Services (ACCSES) from 2000-2003, a national trade association representing the interests of community, non-profit agencies providing supports and services to persons with disabilities. Prior to moving to Washington, DC in 2000, he opened a 100-bed assisted living care facility in Wilmington, North Carolina. Serving as the facility’s assistant administrator, Macsata worked closely with community leaders and state agencies to advocate for seniors.

Macsata has advised candidates for political office, and has also run for office himself at the local and national levels. In 1995, he was just 79 votes short of beating a 22-year incumbent and becoming the youngest person ever elected in the State of North Carolina. In 2000, he formed an exploratory committee to run for the U.S. House of Representatives before ultimately deciding against running for that office. He is a graduate of the University of North Carolina at Wilmington, where he graduated Cum Laude with a Bachelor of Arts in political science. In April 2009, UNCW awarded Macsata – and his business partner – the Political Science Department’s “Outstanding Political Science Graduate” award in recognition for their accomplishments.

Joshua Montgomery, HIV PREVENTION DIRECTOR / VEGAS MPOWERMENT COORDINATOR

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Joshua MontgomeryJoshua Montgomery is a native San Diegan. Joshua has been clean and sober ever since July 14, 1997 when he found out he was HIV+. Joshua has been active in various recovery programs and service work to help those who struggle with addiction. He began his academic studies in 1998 at San Diego Community College with his focus on becoming a counselor.

Joshua moved to Las Vegas in June 2003 and a couple of months later he began working for The Gay and Lesbian Community Center of Southern Nevada. Joshua ran the youth group, coordinated the Vegas Mpowerment Project and counseled those who needed support during the day. He continued his education attending various conferences around the country dealing with HIV/AIDS. Joshua left the Center in 2007 and continued his education at UNLV working on his degree in Social Work.

Joshua returned to The Center December 1, 2009 as the HIV Prevention Coordinator and was promoted to HIV Prevention Director in 2012. Joshua continues his social work course studies (part-time) at UNLV.

Glen Pietrandoni, RPh

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Glen PietrandoniGlen Pietrandoni, RPh, AAHIVE is a 1979 graduate of the St. Louis College of Pharmacy began his pharmacy career as the owner of multiple independent pharmacies in Chicago and its suburbs for 10 years. His pharmacies were purchased by Walgreens in 1990, around the time of the approval of the first HIV/AIDS drugs. At that time, he began working with this community, dispensing much-needed emotional support as well as medication during a time when people did not survive as long with HIV/AIDS as they do today.

From 1996 to 2003, he managed the Walgreens pharmacy at the Howard Brown Health Center which specializes in HIV/AIDS-the first Walgreens pharmacy of its kind, located in an LGBT community center. Today, Walgreens serves people living with HIV/AIDS in all communities across the country, including more than 120 locations within health centers focused on HIV/AIDS. Now a 24-year veteran with Walgreens, Glen is responsible for pharmacy services for people living with HIV/AIDS and Hepatitis across the country. Some of his key accomplishments include implementing patient support programs across multiple channels and providing pharmacist HIV and Hepatitis education.

As part of his ongoing commitment to supporting patients with HIV/AIDS, Glen earned his American Academy of HIV Medicine Expert designation in 2008. At the national level, Glen is a member of the Boards of Directors of ADAP Advocacy Association and AIDS United. He also plays an active role in community initiatives, co-chairing gala committees for HBHC and the AIDS Foundation of Chicago. Glen is also a member of WPRIDE, the Walgreens LGBT affinity group. He is the recipient of the following awards: 2002 Volunteer of the Year, Test Positive Aware Network, 1999 Drug Topics Magazine Pharmacist of the Year-Overall Performance and 1998 Drug Topics Magazine Pharmacist of the Year-Community Service.

Michael D. Shankle, MPH

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Michael D. Shankle, MPHMichael D. Shankle, MPH, is the Director of Prevention and Policy As HealthHIV's Director Prevention and Policy.

Michael is responsible for leading the organization's day-to-day prevention and policy efforts. Prior to joining HealthHIV, Michael began his career as a research specialist with the University of Pittsburgh's Graduate School of Public Health in the Department of Infectious Diseases and Microbiology, where he combined his experience of behavioral health sciences, health research, and technology, to develop online HIV/STI interventions.

While there, he implemented programming that facilitated parity, inclusion, and representation of high-risk, sexually active young adults in HIV community planning processes. In 2006, Michael joined the AIDS Action Committee of Massachusetts, first as Director of The MALE Center (Boston's gay and bisexual men's community health and wellness center), and then as Director of Gay, Lesbian, Bisexual and Transgender health.

Michael has a BS in Biology from the University of Pittsburgh at Johnstown, PA, and a MPH from the University of Pittsburgh's Graduate School of Public Health.

Coy Stout

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Coy StoutCoy Stout joined Gilead Sciences in 2004. As Vice President of U.S. Managed Markets, he leads the National Accounts, Market Access, and Business Operations and Contracts departments for the U.S. commercial organization. Areas of responsibility include public and private payer coverage, patient access programs, product distribution, and government pricing programs for Gilead's products marketed in the U.S. for HIV/AIDS, Hepatitis B, Cystic Fibrosis, Pulmonary Arterial Hypertension, and Ischemic Heart Disease.

Since 2008, he has served on the Board of Directors of the Gilead Foundation, a non-profit organization that seeks to improve the health and well-being of underserved communities around the world. Coy has worked in the field of HIV/AIDS since the early 1990's in various roles as a clinical social worker at the Whitman-Walker Clinic in Washington, DC and as the director of the Maryland AIDS Drug Assistance Program.

Prior to joining Gilead, he was Associate Director of Healthcare Policy and Reimbursement at PAREXEL International Corporation. Coy earned his Bachelor of Science and Master of Social Work at the University of Alabama.

Joey Wynn, Director of Public Policy, Minority Development & Empowerment, MDE

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Joey WynnJoey Wynn has made a career in HIV advocacy, public policy and working in a variety of public health settings over the course of his 22 years in the state of Florida. In 1994, he was involved in the start up of the first Ryan White Outpatient HIV Program (SIS) Dept. at Mercy Hospital in Miami, FL.

In 1996 he joined Florida AIDS Action (FLAAC), based in North Miami, it was a statewide advocacy agency providing medical treatment information & education for patients and physicians; with a focus on increasing awareness for funding from the State Legislature for HIV related services, especially the AIDS Insurance Continuation Program by bringing in a multi-bus tour with patients from around the state to the Capitol, resulting in the first million dollars of state funding earmarked for the AICP program as well as additional funding for other HIV projects.

Then he served for 5 years as the Ryan White Patient Care Administrator for the Broward County Health Department's AIDS Program office, overseeing provision of $20 million of HIV services for two clinics, four pharmacies, and seven subcontractor agencies throughout Broward County.

His next step was a five year role in the Statewide Medicaid HIV Disease Management program, Positive Healthcare, as the statewide Community Relations Director. Acting as a liaison with the six HIV Ryan White "Part A" planning bodies across six cities, he worked directly with various HIV service delivery systems of care throughout Florida. Joey then worked for Broward House for 5 years as the Director of Public Policy. BH is an AIDS Service organization providing the entire spectrum of services for clients: Housing, primary medical care, substance abuse rehabilitation, mental health, and social services for people living with HIV.

He currently is involved at Minority Development & Empowerment as the Public Policy & Community Affairs Consultant, involved in the creation of the first South Florida Hepatitis Network, coordinating grants, and recruitment of providers for a comprehensive indigent care testing linkage and care program for Hep C patients.

He served 14 years on the Florida AIDS Drug Assistance Program (ADAP) workgroup, and served for the past 4 years on the Board of Directors for the National ADAP Advocacy Association (aaa+) in Washington D.C.

He is currently the Chair of the Area 10 Consortia, South Florida AIDS Network (SFAN), serving over 8 years. He also served four years as a member of the Florida Statewide Medicaid Advisory group. He has worked on various local, State, and Federal Pharmacy formulary panels and workgroups over the past 17 years, and developed a Ryan White Part A funded analysis of Pharmacy efficiency / effectiveness in an evaluation report for the Broward County EMA, comparing Florida EMAs for cost & utilization with the Florida ADAP in 2005.

     

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