~ Event Panelists ~
William ''Bill'' Arnold
Keith Blackmon Sophia
J. Byndloss Christine Campbell
Jeffrey S. Crowley
Catherine D. Ferguson
Edward Hamilton Hilary
Hansen Kathie M. Hiers
Deborah Parham Hopson
Diana Jordan Brandon
M. Macsata Emily McCloskey
Marc Meachem Kimberly
Glen Pietrandoni David
Poole Daniel Raymond
Albert J. Rizzi Matt
Salo Carl Schmid
Scott A. Schoettes Michael
D. Shankle Coy Stout
Joey Wynn A.
William ''Bill'' Arnold
is a longtime HIV/AIDS activist and consumer organizer and has been active
in developing HIV/AIDS organizations and HIV/AIDS policy at the local, state
and national level since the mid 1980s. Arnold is a founding director
(1996) of the Community Access National Network (CANN), formerly the Ryan
White CARE Act Title II Community AIDS National Network (TIICANN); he is
currently its CEO. He is also a founder (1995) of The National ADAP Working
Group, a Washington, DC based advocacy coalition of HIV/AIDS organizations.
His involvement with grassroots HIV/AIDS work has included roles from Board
Chair and Board Member, to Buddy to AIDS Educator, Community
Outreach Director, & pre & post test HIV Counselor. Arnold has testified
on HIV/AIDS issues before several county legislatures, the New York State
Assembly and the United States Congress on numerous occasions. In addition,
Arnold has been active in global AIDS activities as Secretary/Treasurer of
AIDSETI (AIDS Empowerment and Treatment International). He also serves on
the Fair Pricing Coalition.
More recently, Arnold has also invested a lot of time in raising awareness
about Viral Hepatitis.
Keith Blackmon is from Bethune,
South Carolina. He has lived with HIV infection since 2004, and HCV since
2006; at that time was terminated from his job, due to illness (HIV). He
moved in 2007 to Bethune SC to take care of an aging grandfather, and get
HIV treatment until 2009.
In 2010, he became a certified beekeeper and opened Jake's Bee Haven, and
in 2011 became a certified journeyman beekeeper and a certified beekeeper
instructor . He has been a client and volunteer at Catawba Care sent 2006,
serving on the client advisers board, a pier consoler, and the advocacy team
among other groups.
He is also a member of the South Carolina HIV /AIDS Care Crisis Task Force.
He has been The Catawba Care Volunteer of The Year.
Sophia J. Byndloss
serves as division president of Ramsell Corporation, a company providing
technology and solutions in the pharmacy benefit management (PBM) and information
management services industry. With more than 17 years of experience in the
healthcare industry, Byndloss' background includes information systems,
prescription benefit program development and administration, training, safety
net program administration, and retail/outpatient pharmacy prescription
processing. Ramsell Corporation serves the public health arena, with a unique
focus and service offering provided to AIDS Drug Assistance Programs (ADAP).
Ramsell Corporation currently administers pharmacy benefits for more than
40% of the nation's ADAP prescription claims.
Prior to serving as division president, she served as vice president of
operations for Ramsell Corporation. As vice president of Operations, Byndloss
was responsible for overseeing the pharmacy service help desk, member service
call center, strategy, client implementations, project management and PBM
operations. As vice president of operations, she successfully managed operations
for the company's portfolio of public health sponsors. Additionally, she
led the company's charge to new and improved data management systems, reporting
and analysis and when implemented, positively impacted operations and client
Byndloss holds a Master of Public Administration, and is active with pharmacy
association National Council for Prescription Drug Programs (NCPDP) and she
served as a board member for Oakland School for the Arts (OSA) 2007 - 2009,
Christine Campbell, Vice
President of National Advocacy and Organizing oversees Housing Works' national
and global policy, advocacy and organizing activities including Housing Works'
support of the Campaign to End AIDS (C2EA), managing the DC and Mississippi
offices and advocacy participation in the International AIDS Housing Roundtable
and International AIDS Conferences.
Ms. Campbell has her Masters of Science in Organizational Development from
American University and has spent over 21 years operating housing programs,
training HIV/AIDS housing providers and advocating for people with special
Ms. Campbell serves as a board member of the National AIDS Housing Coalition
that works to insure that indigent persons living with HIV/AIDS have access
to stable housing and services and served as an adjunct professor New York
University's Wagner School of Public Administration.
Jeffrey S. Crowley, MPH is a Distinguished Scholar
and Program Director of the National HIV/AIDS Initiative at the O'Neill Institute
for National and Global Health Law at Georgetown Law. From 2009 to 2011,
he served as the Director of the White House Office of National AIDS Policy
and Senior Advisor on Disability Policy for President Barack Obama. As the
President's chief HIV/AIDS advisor, Mr. Crowley led the development of the
first comprehensive National HIV/AIDS Strategy for the United States,
focused on lowering the number of new HIV infections, increasing access to
care, and reducing HIV-related health disparities.
During his tenure at the White House, Mr. Crowley also made major contributions
to the development and implementation of the Affordable Care Act, comprehensive
health care reform legislation enacted in 2010. His work helped ensure access
to private health insurance for people living with HIV/AIDS and other people
with disabilities, as well as expanding Medicaid eligibility to millions
of low-income people who are currently uninsured.
Mr. Crowley has dedicated his professional career to advancing approaches
and solutions to the nation's most pressing social policy challenges. From
2000 to 2009, he was a Senior Research Scholar at Georgetown University's
Health Policy Institute and subsequent to its founding, a Senior Scholar
at the University's O'Neill Institute, focusing his work on improving health
care for people with disabilities and chronic conditions through improvements
to Medicaid and Medicare. He also has extensive experience working on such
issues as improving the private health insurance system, protecting consumers
and expanding their ability to navigate the health care system, and protecting
the privacy of personal health information.
Mr. Crowley is a respected leader among people affected by the HIV/AIDS pandemic,
having served in senior positions at the National Association for People
with AIDS from 1994 to 2000. He has worked with domestic and international
advocates and policymakers to advance more responsive and humane policies
regarding HIV treatment, prevention, and research.
Catherine is Director
of Federal Government Affairs with AbbVie. Catherine is responsible for Federal
issues including: Viral Hepatitis, HIV/AIDS, trade, pain management and other
Previously, Catherine worked at Abbott where she handled maternal and child
nutrition, performance and therapeutic nutrition, HIV/AIDS, viral hepatitis,
oncology, personalized medicine, pharmaceutical supply chain security, drug
shortages and science and education and other issues.
Previously, Catherine served as the Health Policy Advisor for Chairman Max
Baucus on the U.S. Senate Committee on Finance. Catherine handled prevention
and wellness, public health, obesity, chronic disease and rural health among
Catherine has a Masters in Comparative and International Law from the School
of Oriental and African Studies at the University of London and a B.A. in
Modern Languages from Montana State University. Catherine loves to travel
and enjoy the outdoors.
Eddie Hamilton has 16 years
experience working as an AIDS advocate in various regions of the country.
Now living in Columbus, Ohio as of 2005, he is working with Ohio HIV+ individuals
at the grassroots level with the ADAP Educational Initiative to gain their
advocacy voice. He challenges and encourages them that complacency
is no longer an option.
For several years, he wore his advocacy hat in Massachusetts as a Consumer
Advisory Board (CAB) President at a Cape Cod Service Organization, then he
became a board member of the Provincetown AIDS Support Group on Cape Cod
assisting that organization with a restructure and merger that had enabled
that organization to become the The Aids Support Group of Cape Cod (ASG)
The HIV and AIDS organization on Cape Cod and Martha's Vineyard was able
to survive the financial climate of 9/11 and beyond.
He was later recognized by both Houses of the Massachusetts Legislature for
his efforts. In 2010, he had received his Degree from Columbus State Community
College in Legal Studies and will be completing his degree at Ohio University
in the Bachelors of Technical and Applied Sciences in the Summer of 2011.
When he isnt busy stirring the pot challenging state agencies
and other organizations about wait lists and other cost containment measures
(i.e medical criteria) that delay or obstruct access to life saving medications,
he spends his spare time saving the neighborhood cats.
Hilary Hansen has nearly fifteen
years of experience in health care advocacy, grassroots, and alliance
development. As the Alliance Development Director for Merck, Hilary is
responsible for partnership development and grants management across Merck
therapeutic areas, including HIV, diabetes, and oncology. Working with patient
advocacy groups, professional societies and trade associations, Hilary serves
as the Merck point of contact on federal policy issues.
During her time as a senior government relations manager at Drinker Biddle
& Reath, Hilary focused her practice on grassroots and advocacy outreach,
with an emphasis on assisting nonprofits and associations. Hilary has worked
with nonprofit patient advocacy groups systems to draft and implement legislative
strategies, particularly related to appropriations and Medicare-related
legislation. She has designed advocacy capacity building strategic plans
for organizations that include Capitol Hill days, coalition building and
Prior to joining Drinker Biddle, Hilary worked at the American Nurses Association
(ANA) as the senior political action specialist, where she was responsible
for organizing grassroots efforts. During her time at ANA, Hilary organized
the "Nurses for Obama" campaign and was heavily involved in health care reform
efforts. Hilary also worked as an aide to Congressman Martin Frost (D-TX)
Kathie M. Hiers is the Chief Executive Officer of
AIDS Alabama, a nonprofit organization in Alabama that provides housing and
supportive services to low-income persons with HIV/AIDS as well as education,
outreach, and testing. AIDS Alabama has subcontracts with the other nine
AIDS Service Organizations and several clinics in Alabama to provide services
to all 67 counties. Kathie has been with AIDS Alabama since January 2001.
Prior to that, she was the Executive Director of Mobile AIDS Support Services
and a founder of the Lee Simmons Fund for People Living with AIDS in Mobile,
Kathie has served locally as Co-Chair of the Central Alabama Ryan White
Consortium, as well as a two-year term as President of the Metropolitan
Birmingham Services for the Homeless, Birmingham's local Continuum of Care
for homeless services. Kathie is a member of the Governor of Alabama's HIV
Commission for Children, Youth, and Adults, the Alabama Legislative Workgroup,
United Way of Central Alabama Council of Executive Directors, and the AIDS
Service Organization Network of Alabama. Kathie leads the advocacy efforts
for the State of Alabama, educating legislators on the state's HIV/AIDS issues,
promoting legislative investment in the HIV/AIDS portfolio, and implementing
an annual Media Day in the state's Capitol in which hundreds of HIV-positive
persons, advocates, and policy makers gather to highlight the extreme need
for resources to fight the HIV epidemic in Alabama.
Each year Kathie provides a workshop for the University of Alabama at Birmingham
Sparkman Program for visiting physicians from across the globe to orient
them on the HIV epidemic in the southern United States. Kathie has been called
upon for guidance on the development of state advocacy networks in the District
of Columbia, Florida, Louisiana, Mississippi, North Carolina, South Carolina,
and Tennessee. Nationally, Kathie served as Co-Chair for the Southern AIDS
Coalition (SAC) from 2004 through early 2009. She currently serves as President
on the board of directors for the National AIDS Housing Coalition (NAHC),
member of the Presidential Advisory Council on HIV/AIDS, and as an elected
member of the Convening Group of the Federal AIDS Policy Partnership (FAPP).
Kathie also serves on the board of the Community AIDS National Network (CANN).
Kathie often serves as the regional coordinator for AIDSWatch in Washington,
D.C., the nation's largest gathering of HIV-positive citizens and AIDS advocates,
and she provides training to the AIDSWatch group on federal funding for HIV
care and housing.
Kathie represented Alabama's nine Title III clinics in the Communities Advocating
for Emergency AIDS Relief (CAEAR) Coalition from 2000 through 2003. Several
national periodicals, including HIV Plus, Poz, The Washington Blade, The
Houston Blade, Positive Populations, Mother Jones, the Progressive, Marie
Claire, Congressional Quarterly, and Southern Voice, have published interviews
with Kathie. Her work in Alabama has also been featured in Jacob Levenson's
book, The Secret Epidemic: The Story of AIDS and Black America. Kathie's
efforts on the Ryan White Reauthorization have also been highlighted in Andrew
Skerritt's Ashamed to Die. Kathie co-authored the housing portions of the
Southern States Manifesto, which addressed the emerging HIV/AIDS crisis in
the southern portion of the United States in 2003; she also co-authored the
Southern States Manifesto: Update 2008, which was featured as the headline
story on MSNBC in July 2008, as well as in media across the United States.
Most recently, Kathie has been featured in a documentary titled, "deepsouth"
that highlights her work in one of the three main story lines. Kathie is
also going to be featured in an upcoming story on HIV crisis in the South
on the Dan Rather Report.
Kathie is frequently called upon to speak on AIDS housing, advocacy, and
service issues. She has been a featured speaker for many press conferences
and Congressional Briefings on the Ryan White Act, for Housing Opportunities
for Persons with AIDS program, and on health disparities, as well as for
the Southern AIDS Coalition. In 2008 she was featured at a Congressional
Briefing in support of a National AIDS Strategy. In 2006 Kathie appeared
on a national webcast for the Southern AIDS Coalition that drew thousands
of viewers. From 2003 to the present, Kathie has been featured or presented
workshops at the U. S. Conference on AIDS, the National HV Prevention Conference,
the HUD National Grantees Meeting, the National Conference to End Homelessness,
the National ADAP Educational Conference, which she co-chaired in 2005, the
National Association of People with AIDS Staying Alive and AIDS in America
conferences, a Physicians for Human Rights conference, and many others. Kathie
is a graduate of the University of South Alabama with a BA in English.
Marcus Hopkins is a policy and
education advocate in the fields of HIV/AIDS, STDs/STIs, and Reproductive
He majored in Health Communication at East Tennessee State University. Marcus
has worked in his field for nearly ten years, and his career has spanned
five states - CA, GA, FL, TN, and WV - where he has worked in both professional
and educational capacities as a corporate training on infectious disease
and as a guest lecturer at colleges and universities.
In addition to advocating, teaching, and lecturing, Marcus is currently an
HIV/HCV co-infection blogger for HEAL Blog, part of the CANN network.
He currently resides in Morgantown, WV, and can be reached at
Deborah Parham Hopson
is the Senior Advisor for HIV/AIDS Policy at the Health Resources and Services
Administration (HRSA). As Senior Advisor, Dr. Parham Hopson provides expert
guidance on initiatives involving national and international HIV/AIDS policies
and issues. Prior to assuming this position in February 2013, Dr. Parham
Hopson served as the Associate Administrator of the HIV/AIDS Bureau (HAB)
for 11 years.
As HAB's Associate Administrator, Dr. Parham Hopson was responsible for managing
over $2.4 billion for programs authorized under the Ryan White HIV/AIDS Program.
The Ryan White HIV/AIDS program funds training for health care professionals
and medical care, treatment, referrals and support services, for over 559,000
uninsured, underinsured, and underserved people living with HIV disease in
the United States and the U.S. Territories.
In addition, as part of the President's Emergency Plan for AIDS Relief, she
directed a multi-million dollar global HIV/AIDS program with training, care
and treatment activities in Africa, Asia, and the Caribbean. Dr. Parham Hopson
received her undergraduate degree in nursing and health from the University
of Cincinnati and her Master of Science and Doctor of Philosophy degrees
in health policy and management from the University of North Carolina at
Chapel Hill School of Public Health.
Joseph Jefferson brings to
his role as HealthHIV's Director of Advocacy and Alliance nearly 20 years
of experience in health-related resource development, organizational development,
coalition building, and LGBT health advocacy. Before joining HealthHIV, Jefferson
was the Senior Policy Associate at the National Coalition for LGBT Health.
Previously, Jefferson held senior leadership positions with the New York
LGBT Community Center; Our House of Portland - an HIV/AIDS service provider
in Oregon; and The Collins Group - a Pacific Northwest-based capital campaign
consulting firm. Jefferson earned his MPH at the Columbia University Mailman
School of Public Health, producing a seminal report on HIV & Aging for
the AIDS Community Research Initiative of America in New York.
Jefferson leads HealthHIVs expanding advocacy platform across multiple
initiatives that include integrated HIV primary care and service delivery
models, workforce capacity building and training, leading edge prevention
and treatment, health equity, LGBT health, and Affordable Care Act
Diana Jordan, RN, MS, ACRN has 28 years of experience
providing high quality healthcare services with a focus on HIV/STDs prevention
and treatment. She has worked in acute care, public health, community-based
and ambulatory outpatient settings serving clients, educating healthcare
professionals, and managing systems of care. She currently serves as the
Director, Division of Disease Prevention, at Virginia Department of Health.
She is responsible for overseeing multiple state-wide programs and services
related to the surveillance, prevention, testing, and treatment of HIV/AIDS,
STDs, TB and viral hepatitis with the goal of reducing those diseases and
These responsibilities include oversight of epidemiologic surveillance activities
(investigations, case follow-up, screening, data management and reporting);
treatment and service delivery activities for HIV/STDs, including the AIDS
Drug Assistance Program; HIV/STD prevention strategies, including counseling
and testing, partner services, and training; and TB contact tracing, screening,
treatment, and prevention services. She manages all operational, technical,
administrative, contract and grants management, public health informatics
and programmatic activities associated with service delivery.
Brandon Macsata serves as
Managing Partner of The Macsata-Kornegay Group, Inc. a national political
and fundraising consulting firm specializing in grassroots campaigns, media
messaging and political fundraising. He is widely recognized for his ability
to connect national, state and local stakeholders interested in influencing
public policy. Macsata has extensive experience working with political
candidates, national and statewide trade associations, and other corporate
entities. In November 2009, Macsata was acknowledged by HIV-Plus Magazine
to be amongst the Top 25 LGBT Leaders Fighting HIV/AIDS.
First diagnosed as HIV-positive in March 2002, Macsata has dedicated much
of his professional and personal life advocating for persons living with
HIV/AIDS. He currently serves as CEO of the ADAP Advocacy Association (aaa+),
a national non-profit organization working to improve the AIDS Drug Assistance
Program (ADAP). In his capacity as CEO, he has successfully assembled a wide
spectrum of ADAP stakeholders to re-energize patient advocacy around the
AIDS Drug Assistance Program at the national level. From November 2003 to
March 2006, he authored a weekly news column on national HIV-related stories
for The Weekly News in Miami, Florida.
He is also a former ADAP recipient. At the age of 27, Macsata was the youngest
Executive Director of a national trade association; he managed the American
Congress of Community Support & Employment Services (ACCSES) from 2000-2003,
a national trade association representing the interests of community, non-profit
agencies providing supports and services to persons with disabilities. Prior
to moving to Washington, DC in 2000, he opened a 100-bed assisted living
care facility in Wilmington, North Carolina. Serving as the facilitys
assistant administrator, Macsata worked closely with community leaders and
state agencies to advocate for seniors.
Macsata has advised candidates for political office, and has also run for
office himself at the local and national levels. In 1995, he was just 79
votes short of beating a 22-year incumbent and becoming the youngest person
ever elected in the State of North Carolina. In 2000, he formed an exploratory
committee to run for the U.S. House of Representatives before ultimately
deciding against running for that office. He is a graduate of the University
of North Carolina at Wilmington, where he graduated Cum Laude with a Bachelor
of Arts in political science. In April 2009, UNCW awarded Macsata
and his business partner the Political Science Departments
Outstanding Political Science Graduate award in recognition for
Emily McCloskey is a Manager
of Policy and Legislative Affairs at the National Alliance of State &
Territorial AIDS Directors (NASTAD), which represents the nation's chief
state health agency staff who administer HIV/AIDS and viral hepatitis programs.
Emily co-chairs the Federal AIDS Policy Partnerships AIDS Budget and
Appropriations Coalition, a coalition of national advocates and organizations
dedicated to increasing federal resources for HIV, viral hepatitis, and STD
education, prevention, treatment and care. She is also coordinates the ADAP
Coalition, a partnership dedicated to addressing issues facing AIDS Drug
Previously, Emily served as the Public Policy Associate at The AIDS Institute,
a national nonprofit public policy research, advocacy, and education
organization. Emily began her tenure in Washington, D.C. in Congressman John
Olvers office (MA-01). Emily graduated from Ursinus College with a
degree in Politics and Media and Communication Studies.
Ken McCormick is the National
Director - Strategic Accounts and Reimbursement at Janssen Therapeutics.
Ken has been with Janssen Therapeutics for 7 years and has been actively
involved in the successful launches of PREZISTA® , INTELENCE®,
EDURANT® and COMPLERA® during his tenure at J&J. Ken is responsible
for managing a team of 8 Access and Reimbursement Managers/ Directors who
focus on key areas of the HIV Payor landscape.
Also among Ken's responsibilities are the development of reimbursement, pricing
and contracting strategies both within the government sector as well as
commercial managed care. Ken developed and implemented the Janssen Therapeutics
Patient Savings Program which provides co pay support for patients. He is
also the liaison for Janssen Therapeutics to the Johnson & Johnson Patient
Ken recently received his Certificate in Health Policy from Thomas Jefferson
University. Ken has been working in the HIV Arena for over 25 years. He started
his career at Burroughs Wellcome in 1980 and subsequently worked for Glaxo
Wellcome, Agouron, and Pfizer before coming to J&J in 2005 working on
the launches of more than 7 HIV compounds. Ken is also very active within
his church as a Trustee and member of the Finance Council.
Marc Meachem is Head of External Affairs North America
at ViiV Healthcare, the only pharmaceutical company 100% focused on HIV.
He is a member of ViiV Healthcare's North American Leadership Team, and manages
ViiV Healthcare's corporate giving, which promotes supporting access and
retention to HIV care, particularly in those communities most affected by
Marc directs ViiV Healthcare's US communications and its public affairs
activities, including high-level relations with the government and national
HIV and health advocacy groups. Mr. Meachem also plays a key role in shaping
the Company's policy initiatives.
Marc is a graduate of the University of Pennsylvania (BS in Economics and
BA in French Literature) and the Fuqua School of Business (MBA).
Kim Miller is a Policy Officer of the HIV Medicine
Association (HIVMA), the professional home for more than 5,000 physicians,
scientists, and other health care professionals dedicated to the field of
HIV/AIDS. Housed within the Infectious Diseases Society of America (IDSA),
HIVMA promotes quality in HIV care and advocates policies that ensure a
comprehensive and humane response to the AIDS pandemic informed by science
and social justice.
In this position since May, 2009, Kim leads HIVMA policy and advocacy efforts
on key issue areas, including appropriations, research, and promotion of
science-based prevention and implementation of health care reform. She also
represents HIVMA in a number of coalition groups within the HIV/AIDS and
public health communities. Ms. Miller serves on a number of working groups
of the Federal AIDS Policy Partnership (FAPP), including the AIDS Budget
and Appropriations Coalition, the HIV Health Care Access Working Group, the
HIV Prevention Action Coalition, and co-chairs the Research Work Group.
Prior to her work with HIVMA, Ms. Miller served for ten years with the Alcohol
Policies Project of the Center for Science in the Public Interest (CSPI),
for three years as a legislative aide to U.S. Representative Tony Hall (D-OH),
and for seven years in varying capacities with Catholic Relief Services (the
overseas relief and development arm of the U.S. Catholic Church), including
two years as a project manager in Senegal (West Africa). She holds a B.A.
in International Relations from the University of Minnesota, and an M.A.
in International Development from Clark University.
Glen Pietrandoni, R.Ph, is
a 1979 graduate of the St Louis College of Pharmacy. After a decade as an
owner of a small chain of independent pharmacies in Chicago, he joined Walgreens
as a store manager and pharmacist at various locations throughout the Chicago
With the advent of early HIV therapy in the late 1980s, Glen addressed the
needs of this community by establishing a relationship with a nearby physician's
practice devoted to treating HIV patients and by understanding the unique
needs of this population. In 1996, Walgreens opened its first HIV-focused
pharmacy inside the Howard Brown Health Center, the Midwest's largest gay
and lesbian healthcare center, which provides primary patient care, case
management, social services, and research under one roof. Glen served as
Pharmacy Manager for the Walgreens site at Howard Brown Health Center until
2003. As Walgreens expanded its HIV services and locations, Glen moved into
the corporate office to manage nationwide HIV and hepatitis patient programs
and services throughout the company's enterprise of retail, specialty, and
other business units.
Glen has received numerous awards and recognition for his work in HIV and
community pharmacy, including Pharmacist of the Year from Drug Topics Magazine
in 1998 and 1999, and Volunteer of the Year for Test Positive Aware in 2002.
Glen is a member of the Association of Nurses in AIDS Care, the American
Academy of HIV Medicine, the Gay and Lesbian Medical Association, and supports
numerous AIDS service organizations across the country.
David Poole has worked with persons
living with HIV disease for over 22 years now.
In 1992 David began volunteering at a local ASO, Big Bend Cares in Tallahassee
and then went on to become their Clinical Coordinator over case management.
This job led to an opportunity with the FL Dept of Health where he ultimately
managed the statewide HIV Patient Care program from 1993-2005 (this program
included ADAP and HOPWA).
In 2005 David left the public sector for an opportunity at Gilead Sciences
where he worked in National Accounts and Government Affairs for over 8 years
and was responsible for teams that covered the entire U.S. with the purpose
of ensuring optimal access to life saving medications for HIV and other life
In late 2013, David joined the AIDS Healthcare Foundation where he continues
to work in the area of public policy and legislative affairs for the Southern
Bureau. He is based in Tallahassee where he lives with his partner of 15
Daniel Raymond is the Policy
Director of the Harm Reduction Coalition, based in New York City, where he
leads national, state and local advocacy efforts to advance strategies addressing
the intersection of substance use and health.
His current work focuses on hepatitis C, opioid overdose prevention, syringe
access, and coverage of harm reduction and addiction treatment and recovery
He currently serves on the AASLD/IDSA Hepatitis C Guidance Panel and the
FDA Antiviral Drugs Advisory Committee. He is a Steering Committee member
and former Chair of the National Viral Hepatitis Roundtable.
He has worked in the fields of syringe exchange and harm reduction for over
David Richwine, RN has worked
with the HIV advocacy and activist communities for over 30 years. In 1990
after working as a volunteer with an AIDS organization in Lexington, KY David
choose to become more involved with direct patient care. As part of that
decision he attend New York Universitys College of Nursing.
After graduation he worked at New York University Medical Center, Tisch Hospital,
on an HIV/AIDS unit. While working as a nurse he became an active member
of ACT UP New York. Following the advent of successful treatment regimens
know as HAART in 1996 the need for that unit ended. David then began his
career in the pharmaceutical industry working directly with advocacy and
activist organizations on policy and treatment issues and providing direct
He has worked in those positions for Merck & Co., DuPont Pharmaceuticals
and Bristol-Myers Squibb. Currently he holds the position of Associate Director,
National Advocacy and Policy at Bristol-Myers Squibb. Prior to the AIDS epidemic
he was living a life-long dream training Saddlebred show horses in Lexington,
On January 6th, 2006, Albert Rizzi came out of a
drug-induced coma and opened his eyes to a world gone dark. The meningitis
that sent him into a near-death spiral had robbed him of his sight.
"I spent a few days feeling sorry for myself. But then my father reminded
me: 'You weren't raised to say you can't do anything. You were raised to
rise over adversity."
With energy and determination, Albert threw himself into learning how to
navigate the world as a blind person. He brought a sense of adventure to
all his endeavors, from grocery shopping to traveling the New York City subways
to driving a race car in a blindfold derby. A tireless and vocal advocate,
Albert debunks stereotypes about those who live with disabilities and speaks
out for job opportunities, accessible technologies, and financial independence
of the disabled, particularly the blind and visually impaired. In 2009, he
founded a not-for-profit, My Blind Spot, dedicated to helping visually impaired
individuals live, achieve, and prosper.
"Children would say, 'Why is he carrying a stick?' or 'Mommy, that man
is blind.' This would usually be followed by an adult voice saying something
like, 'Hush-it's not polite to talk about people that way."
Albert has addressed thousands of people across the U.S. and internationally.
His unique blend of passion, optimism, humor, and outspokenness make him
a sought-after speaker who engages and inspires audiences of all ages.
Matt Salo was named Executive Director of the National
Association of Medicaid Directors (NAMD) in February 2011.
The newly formed association represents all 56 of the nation's state and
territorial Medicaid Directors, and provides them with a strong unified voice
in national discussions as well as a locus for technical assistance and best
Matt formerly spent 12 years at the National Governors Association, where
he worked on the Governors' health care and human services reform agendas,
and spent the 5 years prior to that as a health policy analyst working for
the state Medicaid Directors as part of the American Public Human Services
Matt also spent two years as a substitute teacher in the public school system
in Alexandria, VA, and holds a BA in Eastern Religious Studies from the
University of Virginia.
Deputy Executive Director, The AIDS Institute,
Washington, D.C. Carl Schmid has been with The AIDS Institute, a national
public policy, advocacy and research organization, since February 2004. He
is co-chair of the AIDS Budget and Appropriations Coalition; a Convening
Group member of the Federal AIDS Policy Partnership, and co-chair of an HIV
Testing Reimbursement Work Group.
He is a former chair of the HIV Prevention Action Coalition and the Ryan
White Reauthorization Work Group. He remains active in those coalitions and
others that advocate for Medicaid, Medicare, and Healthcare Reform; the AIDS
Drug Assistance Program; and Hepatitis. He was a member of the Presidential
Advisory Council on HIV/AIDS from 2007-09, and chaired its Domestic Subcommittee.
In 2010 he was named by POZ Magazine as one of the 100 most effective AIDS
fighters and by Whitman Walker Health as one of the 25 individuals who have
played prominent roles in the fight against HIV in DC. Mr. Schmid earned
a B.A. in Public Affairs and a M.B.A. in International Affairs from the George
Washington University in Washington, D.C.
Scott A. Schoettes is the
HIV Project Director at Lambda Legal, the oldest and largest national legal
organization dedicated to making the case for equality on behalf of lesbians,
gay men, bisexuals, transgender people and people living with HIV through
impact litigation, education and policy work.
Schoettes, who lives openly with HIV, has successfully litigated cases involving
the discriminatory denial of medical care to an incarcerated woman living
with HIV in Wisconsin (Rose v. Cahee); the eviction of a 75-year-old man
from an assisted living facility in Arkansas (Franke v. Parkstone Living
Center); and assisted in representing Lorenzo Taylor in his successful effort
to lift the State Department's blanket ban on hiring people with HIV for
the Foreign Service (Taylor v. Rice). More recently, Schoettes co-authored
an amicus brief submitted to the U.S. Supreme Court in its review of the
constitutionality of the Affordable Care Act and prevailed in an appeal to
the U.S.Court of Appeals for the Eleventh Circuit on behalf of an HIV-positive
man denied the opportunity to serve on the Atlanta police force (Roe v. City
On the policy side, Schoettes was the point-person for Lambda Legal's work
on the repeal of the HIV travel ban, recently assisted a subcommittee of
the President's Advisory Council on HIV/AIDS in developing recommendations
to promote safe and voluntary disclosure of HIV status pursuant to the National
HIV/AIDS Strategy, and is working on the reform of laws criminalizing conduct
based on HIV status. He has presented on various topics related to HIV
discrimination at forums across the country, including at the White House
and in a plenary address at the 2013 Lavender Law Conference of the National
LGBT Bar Association.
Schoettes graduated magna cum laude from Georgetown University Law Center
and clerked for the Hon. J. Frederick Motz in the U.S. District Court for
the District of Maryland. Before joining Lambda Legal as the HIV Project
Staff Attorney in 2007, Schoettes spent four years at Latham & Watkins.
Michael D. Shankle,
MPH, is the Director of Prevention and Policy As HealthHIV's Director Prevention
Michael is responsible for leading the organization's day-to-day prevention
and policy efforts. Prior to joining HealthHIV, Michael began his career
as a research specialist with the University of Pittsburgh's Graduate School
of Public Health in the Department of Infectious Diseases and Microbiology,
where he combined his experience of behavioral health sciences, health research,
and technology, to develop online HIV/STI interventions.
While there, he implemented programming that facilitated parity, inclusion,
and representation of high-risk, sexually active young adults in HIV community
planning processes. In 2006, Michael joined the AIDS Action Committee of
Massachusetts, first as Director of The MALE Center (Boston's gay and bisexual
men's community health and wellness center), and then as Director of Gay,
Lesbian, Bisexual and Transgender health.
Michael has a BS in Biology from the University of Pittsburgh at Johnstown,
PA, and a MPH from the University of Pittsburgh's Graduate School of Public
Coy Stout joined Gilead Sciences in 2004. As Vice
President of U.S. Managed Markets, he leads the National Accounts, Market
Access, and Business Operations and Contracts departments for the U.S. commercial
organization. Areas of responsibility include public and private payer coverage,
patient access programs, product distribution, and government pricing programs
for Gilead's products marketed in the U.S. for HIV/AIDS, Hepatitis B, Cystic
Fibrosis, Pulmonary Arterial Hypertension, and Ischemic Heart Disease.
Since 2008, he has served on the Board of Directors of the Gilead Foundation,
a non-profit organization that seeks to improve the health and well-being
of underserved communities around the world. Coy has worked in the field
of HIV/AIDS since the early 1990's in various roles as a clinical social
worker at the Whitman-Walker Clinic in Washington, DC and as the director
of the Maryland AIDS Drug Assistance Program.
Prior to joining Gilead, he was Associate Director of Healthcare Policy and
Reimbursement at PAREXEL International Corporation. Coy earned his Bachelor
of Science and Master of Social Work at the University of Alabama.
Joey Wynn has made a career in HIV advocacy, public
policy and working in a variety of public health settings over the course
of his 22 years in the state of Florida. In 1994, he was involved in the
start up of the first Ryan White Outpatient HIV Program (SIS) Dept. at Mercy
Hospital in Miami, FL. In 1996 he joined Florida AIDS Action (FLAAC), based
in North Miami, it was a statewide advocacy agency providing medical treatment
information & education for patients and physicians; with a focus on
increasing awareness for funding from the State Legislature for HIV related
services, especially the AIDS Insurance Continuation Program by bringing
in a multi-bus tour with patients from around the state to the Capitol, resulting
in the first million dollars of state funding earmarked for the AICP program
as well as additional funding for other HIV projects.
Then he served for 5 years as the Ryan White Patient Care Administrator for
the Broward County Health Department's AIDS Program office, overseeing provision
of $20 million of HIV services for two clinics, four pharmacies, and seven
subcontractor agencies throughout Broward County. His next step was a five
year role in the Statewide Medicaid HIV Disease Management program, Positive
Healthcare, as the statewide Community Relations Director. Acting as a liaison
with the six HIV Ryan White "Part A" planning bodies across six cities, he
worked directly with various HIV service delivery systems of care throughout
Florida. Joey then worked for Broward House for 5 years as the Director of
Public Policy. BH is an AIDS Service organization providing the entire spectrum
of services for clients: Housing, primary medical care, substance abuse
rehabilitation, mental health, and social services for people living with
He also served four years as a member of the Florida Statewide Medicaid Advisory
group. He has worked on various local, State, and Federal Pharmacy formulary
panels and workgroups over the past 17 years, and developed a Ryan White
Part A funded analysis of Pharmacy efficiency / effectiveness in an evaluation
report for the Broward County EMA, comparing Florida EMAs for cost &
utilization with the Florida ADAP in 2005.
A. Toni Young brings more than 18 years of experience
in community mobilization, fiscal and personnel management and creating effective
collaborative partnerships which meet the diverse needs of marginalized
communities. In 1993, she founded NWAP, now Community Education Group (CEG)
and has served as the Executive Director since its inception. Today, CEG
continues to organize individuals and organizations at the grassroots level,
empowering communities and building coalitions on issues associated with
HIV/AIDS, women and the Black community.
Complementing her work at CEG, Toni has a long history of advocating for
the coordination of services for women with HIV/AIDS and working with Black
communities around HIV and other health issues in local, regional and national
settings. As Community Co-chair for the San Francisco HIV Prevention Planning
Council, she facilitated a group of 27 community and government representatives
who were responsible for the allocation of more than $8 million in federal
and state resources. Since her return to D.C. in 2003, Toni has served as
the Chair of the D.C. HIV Prevention Planning Council, a vital role that
allows her to coordinate efforts in this community.
Toni has also lent her expertise to numerous projects, including developing
and presenting HIV/AIDS congressional testimony for the White House working
group, and working with lead staff of the Health Resources Services
Administration (HRSA) to develop the 1996 Ryan White application to states.
She has also served on numerous federal panels and committees including the
CDC Sterile Needle Committee, the CDC meeting on Woman to Woman transmission
and the Ryan White Title I & II Review Committees. Toni has also successfully
planned and executed three regional forums concerning Woman and HIV/AIDS
as it relates to women's health for the National Women's Health Network (NWHN).
Today, Toni is leading efforts at CEG to expand the reach of the organization.
Through the HIV testing training program, CHAMPS, CEG now has over 30 outreach
workers in the field, six days a week, using 8 mobile testing units to educate,
test and link to care clients who are hardest to reach. As well, Toni has
taken the lead in developing educational materials that are used throughout
the country, and promoting replicable models for community development that
she has tested and proven. A leader in the field of HIV/AIDS outreach to
Black communities and women, Toni has made a career of leading the way to
solutions that work, and lending her expertise in community and capacity
building at every opportunity.
CEG is has developed a tablet based enrollment tool for DC Alliance, Medicaid
and Medicare along with HIV/AIDS, Substance Abuse, Mental Health, HEPc,
cardiovascular disease, diabetes, and obesity. This will build on the outreach
CEG currently conducts and folds into the goals of the Affordable Care Act
to increase utilization of preventative care rather than urgent care.
CEG has lead efforts for National Women and Girls HIV/AIDS Awareness Day
for the past 6 years. Develop community partners across the United State,
developing campaign materials and creating the first national Spokesperson
Ms. Vanessa Williams in 2012.